Showing posts with label New Jersey. Show all posts
Showing posts with label New Jersey. Show all posts

Monday, March 12, 2018

Mike Iaconelli

Autism Light #459 is Mike Iaconelli.



Mike Iaconelli is a professional bass fisherman (BASS Elite Series angler), television personality, and podcast show host from Pittsgrove Township, New Jersey. He was born on June 17, 1972. He and his wife Becky have four children. Mike Iaconelli, whose nickname is Ike, is an Autism Light because of his concern to raise awareness for autism. He becomes the first professional fisherman to appear on Autism Light. His name will be placed today on the Autism Light Sports Page, along with other athletes that have been recognized through the years.

In November 2009, Mike Iaconelli cut off his famous beard and he sold it on eBay with the proceeds going to the New England Center for Children, a school for autism in Southborough, Massachusetts. See Ike Auctions Off His Lucky Beard on eBay for Autism Charity for more information on this charitable news.

The following is a YouTube video where Mike Iaconelli explains about his lucky beard helping an auction charity.


Fishin' with a Mission: The auction Mike Iaconelli did to benefit autism was utilized to further the efforts of the Fishin' with a Mission decal program that is led by Eli Delany. More information on this autism awareness initiative of Fishin' with a Mission is at www.mylittlebuddysboat.com.

Television Show: In 2017, Mike Iaconelli started the Going Ike television series on the Pursuit Channel.

Wikipedia: Visit the Michael Iaconelli Wikipedia Page for more information on this Autism Light.

Social Media: For more information on Michael Iaconelli, follow him at these social media channels.
Special thanks to Michael Iaconelli for helping the New England Center for Children and for raising awareness for autism. Hopefully this action will encourage other celebrities to help relieve some of the financial needs that autism agencies have.

Autism Light honors diverse heroes to the world of autism.

Monday, January 18, 2016

Michael Hannon

Autism Light #444 is Dr. Michael Hannon.



Photo of Martin Luther King

"Faith is taking the first step, even when you don't see the whole staircase." 





When autism parents commence on the journey of raising a child with an autism spectrum disorder, they are put in a position, like Dr. King says, of needing to work and love their child persistently without being able to see all the growth and success their child with autism will experience over time. I believe if Dr. King were living today he would have acknowledged the unique challenges autism families face, and would have been especially engaged with how autism impacts families in the African-American community. King would have been very supportive of research into finding out the influences of autism on diverse family systems and would have been publically grateful for the efforts of the following autism father and researcher who is being honored for Martin Luther King, Jr. Day in 2016.

Dr. Michael Hannon is a professor and autism father from Westampton, New Jersey. He and his wife LaChan Hannon have a 13 year-old daughter Nile and an 11 year-old son Avery. Avery has a form of autism. Dr. Michael Hannon is an Autism Light for his research into the potential rewards of fathering a child with autism within diverse communities.

Dr. Michael Hannon serves as the Assistant Professor of Counselor Education at Montclair State University, where his primary responsibility is teaching in the graduate level counseling program. He also serves as a mentor to doctoral students in their counseling doctorate program. Dr. Michael Hannon conducts research related to mental health and counseling and his research specialty is the influence of autism on broader family systems and fathers, with a particular emphasis on fathers and families of color. His website shows a summary of his previous work experience.

Legacy of Dr. Martin Luther King, Jr. (MLK): Dr. Michael Hannon told Autism Light that MLK influenced his work in this way.
Dr. Martin Luther King devoted his life, and particularly the latter part of his life, to an unapologetic fight for social justice. He was courageous to speak out and fight against racial discrimination, socioeconomic disparities, and war in revolutionary ways. His legacy influences my work in being able to share stories and experiences of an understudied and often misunderstood community: Black fathers of individuals with autism. There is important research about how autism affects family systems that includes highlighting disparities in diagnosis timing and access to care between racial/ethnic groups in the United States. While raising children with autism and other developmental differences can be challenging at times, the challenges might be exacerbated when we study the experiences of diverse parents. These exacerbated challenges may be based, in part, by negative interactions with service providers (e.g., teachers, therapists, etc.) that undermine trust between parents and service providers (Michael Hannon, January 13, 2016).

Education: Dr. Michael Hannon has completed the following educational degree programs.
Author: Dr. Michael Hannon has been the author or co-author of over 25 presentations, book chapters, and/or articles on the area of his expertise in counseling, mental health, and autism families.
Highlights of Research Findings: Some recurring messages that Dr. Michael Hannon has heard from fathers in his research include:
  • The most rewarding aspect of fathering individuals with autism is seeing their children successful.  
  • There is an orientation and adjustment process that fathers experience as they learn about their children’s autism diagnosis and possibly have to adjust their relationship expectations with their children with autism.  
  • Fathers seem to appreciate connecting with resembling fathers and families as they navigate fathering an individual with autism. 
  • Fathers are paying close attention to their different forms of capital (Dr. Michael Hannon, January 13, 2016)
Certifications: Dr. Michael Hannon is a National Certified Counselor (NCC) and a Licensed Associate Counselor (LAC) in New Jersey.

Awards: Dr. Michael Hannon received the Presidential Award by the Willingboro, New Jersey and Vicinity Branch of the NAACP in November 2015.
  
Conference Speaker: Dr. Michael Hannon provided the keynote at the 3rd Annual Conference for New Jersey Fathers of Children with Special Needs in October of 2015. Below is a brief excerpt of his presentation. More information on past conferences he presented at are listed on his blog.



Great Expectations Teaching & Advocacy Center for Childhood Disabilities, Inc. (GETAC): Michael and LaChan Hannnon founded GETAC on April 19, 2007 to offer advocacy, educational, and consultative services for parents raising children with developmental disabilities. Michael's wife, LaChan Hannon, serves as the Executive Director and the work of this non-profit is dear and near to them.

The following is a video of Google Hangout where Dr. Michael Hannon was on an online panel called Autism Brainstorm: Guy Talk that Dr. Robert Naseef did in March 2015 as part of a feature on an African-American perspective on raising children with autism. A second part of this series was taped in April 2015.


Advice to Autism Fathers: Dr. Michael Hannon shared this advice to autism fathers with Autism Light. 

"Fathers are important members of the family. When families have experiences that require something new or unexpected from them, it can be a source of both stress and enrichment. As they navigate this experience, I encourage fathers of children with autism to:
  • Learn (more) about themselves so they can engage with their families in healthy and honest ways. Discover (or rediscover) interests, hobbies, stress relief activities, and ways to support personal growth and development.
  • Learn about their children (with or without autism) so they can find connection points. Fathers may find they share interests, attitudes, dispositions with their children, which is awesome. They also may discover something their children enjoy that eventually becomes a mutual interest or something in which they entirely support their children.
  • Learn about autism by talking to trustworthy people who help build a sense of community. These can be other dads, romantic/marital partners, specialists and therapists, school personnel, and/or a faith community (if applicable). (Michael Hannon, January 13, 2016)."

"Life's most persistent and urgent question is, 'What are you doing for others?'".


Others Supporting Autism Families: Dr. Michael Hannon provided this insight to Autism Light on supporting fathers in diverse communities.
I appreciate the ongoing advocacy for individuals with autism by individuals with autism, their families, and concerned community members and groups. One way we can all continue to help families affected by autism is being courageous in helping eliminate the disparities in diagnosis, diagnosis timing, and access to care for families of different racial/ethnic groups. 
Another way to help is to continue balancing the autism narrative. All families experience stress, and raising an individual with autism can be stressful at times, and in different ways than raising an individual who does not have autism. However, the stress/coping narrative is not the only autism story. It’s great to be able to read, hear, and talk to those living with and/or affected by autism when they share their success and reward stories (Dr. Michael Hannon, January 13, 2016).
People-First Language: Dr. Hannon has a specific way in which he speaks about people with autism that affirms their dignity and that they are more than their autism diagnosis. He said this to Autism Light:
One last suggestion for all of us is to affirm the humanity of individuals with autism, by using people-first language. Unless I’m corrected, I try to address people with autism with that moniker: people WITH autism. I get concerned when we label a community by just one identifier, especially when that identifier has been constructed as something negative (e.g., autistic, diabetic, schizophrenic, etc.). Those identifiers can be sources of pride for the individuals living with such conditions and contribute to our diverse communities; however, I err on the side of caution and try to use people-first language in my interactions and recommend others do the same unless told otherwise (Dr. Michael Hannon, January 13, 2016).
Follow Michael Hannon on Social Media: 
Special thanks to Dr. Michael Hannon for being an Autism Light and fighting the good fight as an autism father, researcher, and counselor. His work is a benefit to the autism community and he is an appropriate representative of someone who has a passion to shape the world for the better like the great Dr. Martin Luther King, Jr.

This post is our 5th annual feature to honor someone who is an Autism Light in the spirit of Martin Luther King, Jr. Past honorees of Autism Light on Martin Luther King, Jr. day include:

2015

2014

2013

2012

Autism Light honors diverse heroes to the world of autism.

The photo of Martin Luther King, Jr. in this post is in the Creative Commons of 
Wikipedia and is from the National Archives and Records Administration. The photo of Michael Hannon is used with permission of Michael Hannon.

Saturday, January 16, 2016

New Jersey Lights


The State of New Jersey is the home of 15 Autism Lights. The New Jersey group includes two individuals with autism, two autism fathers, a business, a businessman, a music therapist, a musician, a teacher, a professional bass fisherman, two politicians, and three people who are on the Autism Light Memorial Roll.

  New Jersey Autism Lights

Autism Fathers:
    Business:
    • Toys "R" Us is a toy store that has its corporate headquarters in New Jersey. They were recognized for creating a line of autism friendly toys in their stores.
    Businessman:
    • Eric Kunkel is a businessman from Villas, New Jersey. He showed kindness to a girl with autism on a plane trip.
    Individuals with Autism:
    • Kerry Magro is a young adult with autism who is a recognized author, speaker, and self-advocate. He is from Jersey City, New Jersey.
    • Anthony Starego is a young adult with autism. He was added to Autism Light for his achievements in 2012 as a high school kicker in Brick, New Jersey.
    Music Therapist:
    Musician:
    • Dez Childs is a musician and song writer from Cherry Hill, New Jersey.
    Teacher:
    • Janet Mino is a special education teacher from Newark, New Jersey.
    Athlete:
    • Mike Iaconelli is a professional bass fisherman from Pittsgrove Township, New Jersey. 
    Politicians:
    • Robert Menendez is a United States Senator from New Jersey. His home is in Paramus, New Jersey. He has supported autism causes over the years through his position in the Senate.
    • Chris Smith is a member of the U.S. House of Representatives from Hamilton, New Jersey. He has supported autism causes over the years through his position in Congress. 
    Memorial Roll from New Jersey:
    • James Gandolfini (1961-2013) was an actor whose hometown was Parkwood, New Jersey. Upon his death on June 19, 2013 he left money in his will to a friend who was an autism father. 
    • Herbert A. Kahn (1925-2005) was from Mahwah, New Jersey. He founded what is now Autism New Jersey.
    • Gail Walsh (1954-2012) was an autism mother from Cinnnaminson, New Jersey. She died in an automobile accident on January 19, 2012. The mother of two sons with autism was dedicated to supporting autism causes.

    You may reach all these posts by searching the blog through the "New Jersey" Label.


    The map of New Jersey is attributed to By TUBS [CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons

    Monday, June 1, 2015

    Eric Kunkel

    Autism Light #404 is Eric Kunkel.


    Eric Kunkel is a businessman, husband and father from Villas, New Jersey. Eric Kunkel is an Autism Light for the kindness he showed a three year old girl with autism named Kate Mouland, who he was sitting next to on an airline flight on January 6, 2014 and for his subsequent work on behalf of Easter Seals New Jersey.

    Eric Kunkel works as an Executive Vice President at MMA Technologies Corporation. He graduated in 2008 with a degree in Business Administration from the University of Phoenix (Eric Kunkel Facebook Page).  He earned his degree in Management from Slippery Rock University and graduated from Wilson High School in West Lawn, Pennsylvania in 1991.

    Eric Kunkel was a swimmer/water polo player both in high school and college. In 1999 he was the Collegiate Water Polo Association Rookie Referee of the Year (Collegiate Water Polo Association, January 14, 2014).

    Eric Kunkel was travelling by airplane in January 6, 2014 and sat in seat 16c on Flight 1850 to Philadelphia. He sat next to Kate Mouland and her mother Shanell Mouland. Kate has autism and her mother was apprehensive about how she would handle the flight sitting next to a stranger.

    After he sat down Kate started calling Eric Kunkel her "Daddy". He didn't correct her and he reacted in a sensitive manner and let Kate use his iPad and carried on a conversation with her. Because of Eric's handling of the situation Kate was able to have her most successful plane ride ever.

    Eric Kunkel's family has now become friends with Kate Mouland's family, but after the flight Shanell Mouland did not even know his name. Shanell Mouland is a blogger and wrote a post in her blog Go Team Kate about thanking a stranger in seat 16c of Flight 1850 for his kindness. In the post, Shanell Mouland writes,

    You could have shifted uncomfortably in your seat. You could have ignored her. You could have given me that 'smile' that I despise because it means; 'manage your child please.' You did none of that. You engaged Kate in conversation and you asked her questions about her turtles. She could never really answer your questions but she was so enamored by you that she keep eye contact and joint attention on the items you were asking her about. I watched and smiled. I made a few polite offers to distract her, but you would have none of it (Shanell Mouland, Go Team Kate, January 9, 2014).

    The post went viral and reached Eric so there could be a reunion. The following is a news story on Eric Kunkel and his experience with Kate Mouland.



    Easter Seals: After his introduction to autism through Kate Mouland, Eric Kunkel joine the Board of Easter Seals New Jersey. Anysa Holder of Easter Seals New Jersey said, "It's been such an honor to have someone with the spirit and compassion that Eric has join our board (CBS Local News, April 11, 2014)."

    Special thanks to Eric Kunkel for being an Autism Light. Eric Kunkel's kindness toward Kate Mouland is an example of how airplane travelers can treat encounters with individuals with autism.

    Autism Light honors diverse heroes to the world of autism.

    Thursday, May 22, 2014

    Janet Mino

    Autism Light #342 is Janet Mino.



    Janet Mino is a teacher from Newark, New Jersey. Janet Mino is an Autism Light because she has been teaching children on the autism spectrum for 20 years and her work was the subject of the 2013 documentary called Best Kept Secret.

    Teacher:  Janet Mino is a teacher at the John F. Kennedy School in Newark, New Jersey. The John F. Kennedy School provides an education for special needs student ages 10-21. Janet Mino has been teaching children with autism for 20 years. Janet Mino said this about her teaching:
    I don't get it when people say I have a hard job. I get so much joy. To me, they just think different. I want people to have an awareness that there are children in the inner city with autism that need different services, and need help. Everybody's different. America is made up of different people. They are part of this world like we are (Janet Mino as Quoted in The Montclair Times, Gwen Orel, 5/4/2013).
    Best Kept Secret (2013)The film Best Kept Secret was directed by Samantha Buck and chronicles Janet Mino's efforts as a dedicated teacher to prepare six of her inner city students in their last year of school for life after graduation.

    The following is the trailer to the film Best Kept Secret.  


    Best Kept Secret is now available on DVD and can be purchased from Amazon


    You can follow news about Best Kept Secret on the following social media:
    Here is another preview on YouTube about the film Best Kept Secret.



    Special thanks to Janet Mino for her dedicated work as a teacher of autism students in Newark, New Jersey. In a world that can be cold to people with autism, Janet Mino lights a fire under herself as a teacher so that she may be Autism Light. 


    Autism Light honors diverse heroes to the world of autism.

    Monday, July 22, 2013

    James Gandolfini

    Autism Light #290 is James Gandolfini.


    James Gandolfini, Jr. was a popular actor who was best known for his starring role as the mobster Tony Soprano in The Sopranos. Gandolfi was born in Westwood, New Jersey on September 18, 1961. James Gandolfini had homes in Los Angeles, California and Manhattan, New York, and his hometown was Park Ridge, New Jersey. James Gandolfini died on June 19, 2013 from a heart attack while in Rome, Italy. James Gandolfini is an Autism Light because his friendship and generosity to autism fathers extended to leaving $50,000 in his will to his college friend Doug Katz who has an autistic son named Andrew (Source). James Gandolfini will be added today to the Autism Light Memorial Roll.

    Acting Career/Awards: James Gandolfini is best known for playing Tony Soprano in the HBO TV series The Sopranos which debuted in 1999 and ran through 2007. Gandolfini's exceptional career as an actor included winning three Emmy Awards, three Screen Actors Guild Awards and two Golden Globes for Best Actor-Drama Series (Source). You can read more about James Gandolfini's complete career at his page at Biography.com or at IMDb

    Here is a news story on Hollywood's reactions to James Gandolfini's Death. 



    Friend of Autism Father Doug Katz:
    Doug Katz, a college roommate of James Gandolfini, has a 12 year old son named Andrew who has autism. Over the years James Gandolfini helped Doug Katz with some special expenses related to his autistic son, and at Gandolfini's untimely death his will included a gift of $50,000 for Doug Katz (Source).

    Julie Marsh and Lorena Mongeli of the New York Post talked to Doug Katz about how much James Gandolfini had helped out through the years with their family's autism expenses. Doug Katz said this about James Gandolfini:
    He got him nutritional supplements, anything Andrew needed to help him lead a better life. Jim sponsored gymnastics for my son. He always said, 'How can we help? How can we make it better?' And none of it was lip service. I'd rather have Jim alive than his money. You could never meet a nicer guy in the world. He was the glue that kept us together (Source).
    Friend of Autism Father John Travolta: James Gandolfini was good friends with the actor John Travolta. John Travolta's son Jett Travolta had autism (Source). After Jett Travolta tragically died in 2009 at age 16, James Gandolfini stayed with his friend John Travolta for a week to make sure he would be okay.

    Here is a video of John Travolta describing how much James Gandolfini's friendship meant to him.


    Wikipedia: You can read more information about James Gandolfini on his Wikipedia page.

    Special thanks to James Gandolfini for being an Autism Light and having a deep friendship with autism fathers Doug Katz and John Travolta. We mourn the loss of this generous friend who understood how financially and emotionally challenging autism can be. James Gandolfini made a real difference in two autism families, whether it was being present with John Travolta after the loss of his son or providing financial assistance to Doug Katz with his autism family expenses.

    Autism Light honors diverse heroes to the world of autism.

    The photo of James Gandolfini is attributed to Isabelle Vautier and is in the Creative Commons of Wikipedia.

    Wednesday, May 15, 2013

    Chris Smith

    Autism Light #279 is Chris Smith.


    The Honorable Chris Smith serves as a member of the United Sates House of Representatives, representing the 4th District in the state of New Jersey. He has served in the House of Representatives since 1981. Chris Smith was born in 1953 and resides in Hamilton, New Jersey. Rep. Smith's passion to help those with autism has been evident through his long and consistent record of advocacy and leadership on behalf of autism friendly legislation. Rep. Chris Smith is an Autism Light because his political leadership has been a light for the cause of autism.

    Here is an interview that Chris Smith did in 2012 with WZBN about his autism work and his concern for the cause.


    Family: Chris Smith is married to Marie Smith. They have four grown children.

    Initial Advocacy: The beginning of Rep. Chris Smith's work in autism can be traced back to 1998, when he was contacted by  autism parents Bobby and Billie Gallagher of Brick, New Jersey, who had concerns about the number of families with autism in their community. Because of this constituent concern, Smith asked the Centers for Disease Control and Prevention to research the prevalence of autism in New Jersey. While New Jersey has one of the highest rates of autism in the United States, there is evidence now that virtually all communities across the country without prejudice have been impacted by autism.

    Autism Legislation: Chris Smith has a long record of support for autism legislation. "Smith’s landmark legislation enacted in 2000—the Autism Statistics, Surveillance, Research and Epidemiology Act (Title I, P.L. 106-310) created the first comprehensive federal program to combat autism. In 2011, another piece of legislation he authored, The Combating Autism Reauthorization Act (CARA),” now Public Law 112-32, was enacted and will provide $693 million to continue federal programs through 2014 (Source)." There is a section of Chris Smith's website that that is dedicated to highlighting all of his autism achievements.

    House Autism Caucus: In 2001, Rep. Chris Smith and Rep. Mike Doyle (Pennsylvania's 14th District) founded the House Autism Caucus and they serve as co-chairs of the caucus (Source).  There are currently 133 members of the House of Representatives who are part of the Autism Caucus.

    Congressional Autism Hero: Chris Smith received the "Congressional Autism Hero" Award in April, 2013 from Autism Speaks.  Smith said about the award, "We must seek ways for early diagnosis, effective treatment and even hope for a cure someday. There is so much more work to do, but I am especially honored to receive this recognition during National Autism Month (Source).”

    Here is a video of Congressman Chris Smith addressing Autism New Jersey's 29th Annual Conference in 2012. In it he discusses the past victories and future goals that he shares for the autism effort.


    Other Legislation: Other caucuses besides Autism that Chris Smith has chaired which reveal his social concern include: Pro-life, Alzheimer's, Lyme Disease, Spina Bifda, Human Trafficking, Refugees, and Combating Anti-Semitism. According to the independent watchdog organization Govtrack, Chris Smith is ranked 2nd among U.S. House Members for the amount of legislation that he authored over the last two decades that has made it through the political process to become law.

    Wikipedia: You can read more about Chris Smith on his Wikipedia Page.

    Social Media: You can follow Chris Smith at the following social media areas.
    Special thanks to Rep. Chris Smith for his years of advocacy for autism in the United States Congress. Autism legislation surely wouldn't have passed without the help of heroes like Chris Smith working so hard to break through the political differences in Washington for the cause of autism.

    Note: If you liked this post you may wish to read about Sen. Robert Menendez who was Autism Light #54. He is another New Jersey Politician, who has a passion for autism advocacy.

    Autism Light honors diverse heroes to the world of autism.

    The photo of Chris Smith is in the Public Domain.

    Tuesday, April 30, 2013

    Herbert A. Kahn

    Autism Light #276 is Herbert A. Kahn.


    Herbert A. Kahn passed away at age 80 on September 29, 2005. He was from both Boynton Beach, Florida and Mahwah, New Jersey. Herbert A. Kahn is an Autism Light for being a founder of autism organizations that were important in the early history of autism diagnosis. He was part of a small group who along with Bernard Rimland and Ruth Sullivan founded the National Society for Autistic Children (now the Autism Society of America). He was also a founder of the New Jersey Center for Outreach and Services for the Autism Community (now Autism New Jersey). You can read Herbert A. Kahn's family placed obituary online at Legacy.com. Herbert Kahn will be added to the Autism Light Memorial Roll today and join other autism heroes who are at rest.

    The Six Letter Word blog paints a picture of the founding of the National Society for Autistic Children (now the Autism Society of America) in an Autism Profile on Herbert Kahn.
    He promoted autism awareness starting in 1965, when little was known about autism and families affected by autism had scant hope for happiness or understanding.  During that time, it was believed that autism was a severe emotional disturbance caused by poor parenting, not the neurological disorder we know it is today. It’s difficult enough to learn for the first time that your child will be challenged his or her whole life by autism. But the belief of that era – that you as a parent caused your child’s autism – must have been devastating.  I’m impressed that Mr. Kahn and his wife Rosalyn were one of the many families who read Dr. Bernard Rimland’s book INFANTILE AUTISM, which refuted this parenting theory and instead advanced the theory that autism was an organic disability. Dr. Rimland and Ruth Sullivan organized the first meeting of the NSAC, which was held in Herbert and Rosalyn Kahn’s home. That meeting gave the founding parents hope for a better future for their children and spread that hope to countless other families over many years (Source).
    Education: Herbert Kahn earned his bachelor's degree from Indiana University.

    Military Service: Herbert Kahn served in the Navy during World War II.

    Career: For 50 years, Herbert Kahn was the owner and principal of J.L. Kahn & Sons, Inc. and was a manufacturers representative in the food service industry.

    Autism Work: Herbert A. Kahn was a leader for autism and improved the lives of children with autism in New Jersey and beyond through his work in three important bodies.
    • In 1965 he was one of the founders of the National Society for Autistic Children (now the Autism Society of America).
    • He was a founder and Board member of the New Jersey Center for Outreach and Services for the Autism Community (now Autism New Jersey)
    • He was a member of the Bergen County Board of Special Services of Bergen County, New Jersey.
    Herbert A. Kahn was survived by his daughters "Ellen Kahn Rampell and Laura Kahn; a son, Jerry; a brother, Richard; and three grandchildren. He was predeceased by his wife of 44 years, Roslyn T. Kahn. A funeral service was held at Beth-El Cemetery in Westwood, NJ on October 2, 2005 (Source)."

    We remember Herbert A. Kahn today and all his work for autism. May his legacy continue to inspire others to give of themselves for the cause of autism.

    Autism Light honors diverse heroes to the world of autism.

    Note: If you liked this article you may wish to read an earlier post on Dr. Bernard Rimland who was Autism Light #90.

    Sunday, January 20, 2013

    Jennifer Pacht Goodman

    Autism Light #252 is Jennifer Pacht Goodman.





    Jennifer Pacht Goodman is a music therapist from Watchung, New Jersey who is utilizing music to change the lives of people with autism.  A former child actress and Broadway singer, Jennifer Goodman opened her music therapy business called Jammin Jen in 2009. Jennifer Goodman is an Autism Light for the help she is providing those with autism through music therapy.

    The following is a video of Jennifer Goodman providing music therapy. Dozens of other videos are available on her YouTube Channel.



    Early Career:  Jennifer Pacht Goodman explains her early career via Autism Light in this way:
    As a child, I was an actress, I auditioned for Broadway shows, commercial, and movies. I decided as a young adult to go to school for Musical Theater thinking I could be a Broadway star. I loved the theatre and after graduating the Boston Conservatory of Music, where I studied theatre, I immediately was cast on Holland America cruise ship as a cast member for their shows. IT WAS FUN! I was young and I was living what at the time, I thought was my dream. I also traveled throughout Europe doing Broadway tour shows.
    Jennifer Pacht Goodman reflected on how her life was changed at age 25 when she took her first Music Therapy class at New York University. She said, "I literally can remember, like it was yesterday where in the classroom I was sitting when I knew in my heart, that I wanted to be a Music Therapist."  At that point her plans changed from seeking the lights of Broadway to being a music therapist and an Autism Light for children with autism.

    Education: Jennifer Pacht Goodman graduated with the Bachelor of Fine Arts degree in theater from the Boston Conservatory of Music and earned a Master of Arts Degree in Music Therapy from New York University.

    ABA Certification: Jennifer Pacht Goodman is an Applied Behavioral Analysis (ABA) therapist who is trained in three forms of ABA (Source).

    • Applied Behavioral Analysis: Discrete Trial Testing (DTT)
    • Vincent Carbone's techniques of Verbal Behavior
    • Picture Exchange Communication System (PECS)
    Jennifer Pacht Goodman finds that the combination of Music Therapy and ABA principles is the most effective approach.

    Jammin Jen Music Therapy Program: Approximately 50 children receive one on one therapy at Jammin Jen's studio. In addition, they lead programs in 10 private and public schools in New Jersey that reach dozens of additional students.

    Here is one of the many testimonials from a parent with a child in Jammin Jen's program.
    Jenn has truly helped James find his "voice". He has such a great time singing, dancing, and playing instruments, it doesn't seem like the hard work it is. Since starting with Jenn, his speech and coordination continue to improve and his learning skills that will bring him a lifetime of enjoyment. If only therapy was this fun (Source).--Linda M. Autism Mother

    Contact: You can find out more about Jennifer Pacht Goodman's music therapy at her website at www.jamminjenn.com. Or you can email her at Jenn@jamminjenn.com or call (917) 922-3227. 

    Other Programs: Creative Speech Solutions, Inc. describes some of Jennifer Pacht Goodman's other accomplishments beyond Jammin Jen like this. "Jennifer created the Music Therapy Program at the McCarton Center in New York City, where she enhanced the lives of numerous children. She is also co-creator of a special needs music class at Tumble James in Scotch Plains, NJ. She skillfully combines her theatrical and multifaceted clinical training into an effective, unique, and energetic approach (Source)."

    Value of Music Therapy: Jennifer Pacht Goodman states her belief in the value of Music Therapy this way via Autism Light.
    The value of music therapy to those with autism is extraordinary and unique relative to other therapies that children with autism commonly receive. Music is special in a way that humans universally can appreciate, of course including those with with special needs. Music is a medium that transforms those subjected to it. It affects our mood, our processing, our sensations, and our abilities. It is a tool utilized to enhance progress, processing, and goal attainment. As we all know music can generate joy, recreation, and fun for example. As certain music is played/chosen, it is used to deliberately evoke certain responses. Often progress transcends what might be other wise possible in other therapies or settings. Please understand that I think other therapies like, ABA, occupational, speech, and others are crucial. Their importance, if not emphasis should not be discounted. It's just that I understand the power of music. I see it at work every day.
    Incorporating Music Therapy into Everyday Life: Jennifer Pacht Goodman has this suggestion for how to incorporate music therapy into the life of those with autism.
    Working with a seasoned and talented music therapist is a terrific idea.  But by no means is that the only way an individual with autism should experience music.  The best thing about music is that is is everywhere!  It is inexpensive to buy and readily available.  Listen, move, play, dance!!!!  Let it impact you.  Parents can use melodies of simple, familiar children's songs to get their children to accomplish something that might be difficult.  An example might be, a child is having a tantrum because they do not want to put their PJs on for bedtime ritual.   Instead of the parent becoming frustrated, they can help their child by making the situation less of a struggle, by singing.(Sung to the tune of Twinkle Twinkle " It is nighttime and it's time to go to sleep.  Pj's on, Pj's on we must put our Pj's on.  It is nighttime, it is time to go to sleep."  Musical repetition, allows for security so I encourage all caretakers of a child with special needs to try this, and tailor the lyrics to fit your child's unique needs.
    Social Media: You can follow Jammin Jen on the following social media areas:
    Special thanks to Jennifer Pacht Goodman for her work in music therapy. She is truly an Autism Light, changing autism one life at a time.

    Autism Light honors diverse heroes to the world of autism.

    Photo: The photo in this post is used with permission of Jennifer Pacht Goodman


    Tuesday, November 20, 2012

    Dez Childs

    Autism Light #234 is Dez Childs.


    Dez Childs is a contemporary Christian singer and songwriter from Cherry Hill, New Jersey.  Dez Childs is an Autism Light for her contribution to autism awareness through her inspirational autism song called Father Song.  Dez Childs helps us understand autism through the perspective of a talented musician and believer in the Christian faith.

    Dez Childs began singing at conventions and festivals when she was just 12 years of age. She was following in her mother's footsteps who had a professional singing career under the name of Gigi Parker. Dez Childs became a Christian believer at age 15 and then started using her musical talent at worship gatherings for the church. Dez Childs is married to Steve Childs. Steve Childs is her producer, and a vocal instructor who is featured on the website www.virtualvoicelessons.net.

    The following is a video of Dez Childs singing her autism song called Father Song.  It is about the challenges faced by family members of children with autism. You can purchase the song on iTunes as part of Dez Childs album called Heart Cry. A portion of the proceeds will go to benefit autism organizations.


    The lyrics to Father Song were written by Tara Bruce, a good friend of Dez Childs. Tara's son Colin has autism and through this song both Tara Bruce and Dez Childs are able to share the story of Colin's struggle with autism. The song accompanies the autism book Tara Bruce wrote called Why Is Colin Like That?

    Dez Childs has received positive reactions to the Father Song in the autism community. She writes to Autism Light:
    We have received an overwhelming amount of positive feedback concerning the song. From YouTube subscribers to family members of Tara Bruce, they have all been moved to share the song with others to help create an awareness of this behavioral disorder.
     
    Autism Light asked Dez Childs if she had any encouragement for the autism community.  She shared these words of particular relevance to those who believe in the Christian faith:
    Father Song is a simple prayer to God Who is the source of all hope. When families are faced with these kinds of situations it is easy to lose hope. Jesus said that in this life we will have tribulation but to not be afraid because He has overcome the world. There will be a day when there will be no more tears, disease nor death, but in the meantime we are to keep praying for strength to push on.
     
    Music Teacher:  Dez Childs has also served as a music teacher for School of Rock and Musically Speaking Studios (Source). You can vist her website at www.dezchilds.com for more information on her outstanding up and coming career as a musician.

    Social Media:  You can follow Dez Childs on the following social media areas.
    Special thanks to Dez Childs for being an Autism Light. Father Song is an inspiration to the autism community. A link to this post for Dez Childs will also be placed on the Autism Light Music page today. We look forward to hearing more inspiring things about Dez Childs' work as a musician in the future.

    Autism Light honors diverse heroes to the world of autism.


    The photo in this post was used with permission of Dez Childs.

    Thursday, November 1, 2012

    Anthony Starego

    Autism Light #228 is Anthony Starego.
     
    Anthony Starego is a senior at Brick High School in Brick, New Jersey. He has autism and is the place kicker for his high school football team.  Anthony was an orphan at the age of 3 and lived in 11 foster homes before being adopted by Ray and Reylene Starego. Anthony Starego is an Autism Light for his achievements in football and how he has overcome disabilities and disappointments in his life to be an inspiration to others who have autism.
    Anthony Starego kicked the game winning field goal on October 19, 2012 in a game where his team Brick High School played Toms River North High School.  Below is a video on Anthony Starego's amazing accomplishment on the football field.
     
     
    Anthony Starego's coach Kurt Weiboldt said his autism is an asset as a kicker, "Fifty times a day, that's all he does. Just three steps back, one over and he hits the ball. That's what he knows and that's what he did (Source)." 
    Anthony said this about his experience with football in high school:  "I do the same thing over and over again. It helps me a lot, and I'm having the best day of my life (Source)."

    Anthony Starego will be added to the Autism Light Sports page and join some other fine high school athletes who have autism. We wish him the best in his future endeavors as his outstanding attitude, dedication, and talent shines a light for autism.  
     
     Autism Light honors diverse heroes to the world of autism.

    Saturday, June 23, 2012

    Stuart Chaifetz

    Autism Light #203 is Stuart Chaifetz.


    Stuart Chaifetz is from Cherry Hill, New Jersey and is a 44 year old single father of a 10 year old boy with autism named Akian. Stuart Chaifetz has become a father on an anti-bullying mission, since February 17, 2012, when he sent his son Akian to school with a recording device in his bag. The 7 hours of recording picked up highly inappropriate things being said to the child by school personnel. Stuart Chaifetz is an Autism Light because of how he had the courage and insight to investigate his son's learning environment and for how he was willing to take the public risk to become an advocate for anti-bullying measures in the autism community as a result of this experience.

    Stuart Chaifetz' son Akian was attending Horace Mann Elementary School in Cherry Hill, New Jersey in the 2011-2012 school year and school officials reported that the 10 year old Akian was becoming violent at school. Stuart Chaifetz felt that there had to be some unknown reason for his son's behavior and as a result he sent his son to school on February 17, 2012, with a hidden recorder to learn about his typical day at school. The shocking information Stuart Chaifetz learned in the recording did not just begin a mission to prevent other children in Cherry Hill, New Jersey from facing similar bullying in the future, but it has had ramifications that can be felt in the autism community around the world regarding the vulnerability to bullying of nonverbal students with autism at the hands of caregivers and teachers.

    The following is the video Stuart Chaifetz made in April, 2012 to describe the situation and publically share what he uncovered. It has received over 4.5 million views on YouTube. Despite being understandably disturbed by what his son endured and his passion to protect any other children from being harmed by the school officials connected to the recording, in the spirit of an Autism Light Stuart Chaifetz stresses peace in the description of this video by saying, "Please do not harass anyone!!! I plead with you not to try to contact the teacher or aide or anyone involved with this issue."

     

    Social Media: You can follow Stuart Chaifetz at the following social media pages.
    • Facebook. Stuart Chaifetz has started a Facebook page that now has over 45,000 fans called "No More Teacher Bullies", where you can keep track of the ramifications of this situation and of his crusade to raise awareness of bullying against children with autism. The Facebook page is at https://www.facebook.com/NoMoreTeacherBullies.
    • YouTube. Stuart Chaifetz has a YouTube Channel where he shared the above video. It is at http://www.youtube.com/user/StuChaifetz.

    Media Attention: Stuart Chaifetz' story was mentioned by national media, including the following:
    You can also see an interview here that Stuart Chaifetz did with CNN.


    For more information about Stuart Chaifetz and the ongoing ramifications of his anti-bullying efforts visit his website at http://www.hnva.net/teacherbully/.

    Special thanks to Stuart Chaifetz for standing up for his son Aiken and in the process becoming an advocate for anti-bullying for the larger autism community. His efforts are contributing to autism awareness by working to create a positive outcome from a sad and unfortunate situation involving a vulnerable child with autism.  What started with a simple act of sending a recording device to school with his son has become a campaign to raise awareness on bullying of children with autism by their teachers.


    Note: This story about Stuart Chaifetz is the first in year 2 of the Autism Light blog. Despite the negative emotions that this story may raise, we believe that this is one of those stories that can lead to a greater good from the positive and constructive efforts of Stuart Chaifetz and others who respond to this unfortunate situation with anti-bullying campaigns and protocals. Although this story is alarming it does not diminish the honor and gratitude owed to the hundreds of thousands of dedicated teachers and other school personnel who are associated only by profession with the details of this story. We are sure those dedicated ones would welcome additional accountability so that the situation is never repeated.

    Autism Light honors diverse heroes to the world of autism.

    Monday, January 23, 2012

    Gail Walsh

    Autism Light #133 is Gail Walsh.


    Gail Walsh of Cinnaminson, New Jersey died on Thursday, January 19, 2012, in an automobile accident. Gail Walsh was 57 years old and she is survived by her husband Dan and two autistic sons--Dylan, age 19, and Cody, age 16. Gail Walsh is being named an Autism Light posthumously because of her passionate work for raising money for the Greater Delaware Valley Chapter of Autism Speaks and she will be added to the Autism Light Memorial Roll.

    Here is a news story on the tragedy that claimed Gail Walsh's life.


    View more videos at: http://nbcphiladelphia.com.

    Autism Speaks Volunteer: Gail Walsh was passionate about helping Autism Speaks raise money to find a cure for autism that she hoped would help her two sons Dylan and Cody. She had worked for over a decade to support Autism Speaks. Gail Walsh and her family had raised about $100,000 for Autism Speaks in the past several years. Christina Carty, the executive director of the Greater Delaware Valley Chapter of Autism Speaks said Gail Walsh "brought together so many people to support our cause. Her entire family were leaders for our chapter, and she was among the top fundraisers every year (Source)." The Delaware Valley Chapter of Autism Speaks had planned to honor Gail Walsh at an event on February 3, 2012. 

    Funeral: Gail Walsh's funeral was held on Thursday, January 26, 2012 at the Epworth United Methodist Church in Palmyra, New Jersey. Gail Walsh's online obituary is at this link.

    Memorial Donations: Donations in Gail Walsh's memory can be made to Autism Speaks, Greater Delaware Valley Chapter at their website or by mail at 216 Haddon Ave, Suite 403, Westmont, N.J. 08108.

    The following news articles have been written about Gail Walsh's accident.
    The autism community will miss the energy and example of Gail Walsh. It is the hope that as respects and honors are paid to her that others will capture that infectious desire to find a cure for autism and carry forth Gail's unfinished work. Let's keep our thoughts and prayers with Gail's family at this time.

    Autism Light honors diverse heroes to the world of autism.

    Monday, January 2, 2012

    Kerry Magro


    Autism Light Classic
    Updated on January 1, 2016. 

    Autism Light #119 is Kerry Magro.




    Kerry Magro is 26 year old from Jersey City, New Jersey. Kerry Magro was diagnosed with autism at age 4. Kerry is a very accomplished college graduate and writer who is an advocate for autism awareness. Kerry Magro is an Autism Light because of his contributions to autism awareness in New Jersey and around the country as a self-advocate.

    Kerry Magro shares his story through 3 poems in this video produced in 2012.



    Awards: Kerry Magro received the 2011 Outstanding Individual with Autism Award presented at the Autism Society of America's Conference in Orlando, Florida. He has worked with Senator Robert Menendez on the renewal of The Combating Autism Act and on advocating that public buildings like the White House use blue lights in recognition of autism awareness month. Sen. Menendez was Autism Light #58.

    Seton Hall University: Kerry Magro is a Graduate of Seton Hall University's Stillman School of Business's prestigious Leadership Development Honors program, and majored in Sports Management.  He also earned a Master's Degree in Strategic Communications from Seton Hall. Kerry Magro's perspective on being a Seton Hall student was featured on Seton Hall's YouTube channel. While at Seton Hall, Kerry Magro started the first club on campus for students with disabilities called Student Disabilities Awareness.  

    KFM Making a Difference in the Community: Kerry Magro is the founder and CEO of KFM Making a Difference in the Community. The mission of KFM Making a Difference is to provide housing for special needs individuals in New Jersey. His website is at http://kerrymagro.com.  His website proclaims Kerry Magro's favorite saying:

    Autism can't define me...I define autism!

    Key Note Speaker: Kerry Magro has spoken at over 400 events throughout the United States on autism and is available for future events. His upcoming speaking schedule is listed on his website. The following video is a TED presentation that Kerry gave in 2014 on the path of autism to college.




    Author: Kerry Magro has written the following three books about having autism in special situations.

    Social Media: You can follow Kerry Magro at the following social media areas.
    Other Blogs: Kerry Magro has been featured on the following blogs in addition to Autism Light.
    Movie Consultant: Kerry Magro was a consultant on the movie Joyful Noise that was released in 2012. The movie features a character who is an adult with Asperger's.

    Special thanks to Kerry Magro for being an Autism Light. The autism community is brighter with the light that comes from Kerry Magro's diverse work. We hope to be hearing a lot more from Kerry Magro's work in the future.

    Autism Light honors diverse heroes to the world of autism.

    Photo: The photo in this post was used with the permission of Kerry Magro.