Showing posts with label Christian. Show all posts
Showing posts with label Christian. Show all posts

Saturday, March 17, 2018

Nancy Herndon Cale

Autism Light #461 is Nancy Herndon Cale.




Nancy Herndon Cale served as an advocate in the autism community for the past two decades, motivated by her personal relationship to autism as a grandmother. Her grandson Wynn Johnson has autism. She was born on January 5, 1944, in Atlanta and passed away on August 11, 2017, at the age of 73. Nancy was the co-founder of Unlocking Autism and had worked for over a decade as a counselor at the hotline call center for Autism Research Institute. She is survived by three children, Todd Hale, Shannon Johnson and Branndan VanEgmond, and four grandchildren. Her memorial service was held on August 13, 2017 at the Peachtree City Seventh-Day Adventist Church in Sharpsburg, Georgia (Read more at Dignity Memorial). Nancy Herndon Cale will be placed on the Autism Light Memorial Roll today.

The following is a photo tribute to Nancy Cale from her daughter Shannon Johnson's YouTube Channel.




Unlocking Autism: Nancy Herndon Cale co-founded Unlocking Autism in 1998 with Shelley Hendrix Reynolds, in honor of her grandson, Wynn. In her role at Unlocking Autism, "Nancy fielded many thousands of calls and emails from families in need in the U.S. and around the world (Read more at National Vaccine Information Center, August 14, 2017)." She earned a Certificate of Special Congressional Recognition for her work in Unlocking Autism that involved fostering state and local governmental partnerships to help meet the needs of the autism community (Read more at Dignity Memorial Obituary).

Autism Research Institute: In her work at the Autism Research Institute, Nancy Herndon Cale answered calls at their hotline and served as an administrative assistant for conference planning.

Nancy Cale once said this about how the call center brought added purpose to her life:
I am humbled each and every day by the depth of the needs and concerns of those who call searching for help for their loved ones with autism. I am happy knowing the generous heart of our community makes it possible to assure new parents, parents facing new struggles, and adults looking for help. Bless you all who take time to reach out to others as we work to make life better for those who ask for our help (Read more at Autism Research Institute: Remembering Nancy Cale).
Nancy was indeed so dedicated to the work of the autism hotline call center, she continued to answer phone calls for Autism Research Institute up until the very day she was admitted to the hospital in August 2017 (Read more at Dignity Memorial Obituary).

We remember Nancy Herndon Cale for her efforts to counsel and provide community resources for families that struggle with autism. Her legacy is that of an autism grandmother who determined to do what she could to shine a light for autism. Her grandson Wynn Johnson can be very proud of his grandmother. His autism diagnosis spurred Nancy Herndon Cale to begin the great work she did. May Nancy Herndon Cale's example as an autism grandmother encourage others to make a difference for autism.

Autism Light honors diverse heroes to the world of autism.

Saturday, March 10, 2018

Jason Hague

Autism Light #458 is Jason Hague.



Jason Hague is an autism father, husband, Christian pastor, storyteller, and writer. Jason and his wife Sara have five children, including a 12 year old son Jackson who has autism. Jason is an Associate Pastor at Christ's Church, an independent, non-denominational Christian church in Junction City, Oregon. Jason Hague is an Autism Light for raising autism awareness through his personal sharing of his life online from the honest heart of an autism father.

The following is a poem Jason wrote for his son Jackson which he recites in this video on his YouTube Channel. The version of this video on Facebook went viral and has received 3 million views and counting.


Blogger: One of the best ways to get to know Jason Hague and his life as an autism father in an up close way is to read through his blog posts located at www.jasonhague.com. He wrote a special post on February 6, 2018, called "A Letter to My Autistic Son on His 12th Birthday".  The blog also has letters Jason wrote to Jackson at his various birthdays over the years when he was a growing child.

Jason Hague's blog reveals his emotions as a father that captures the feelings that many autism fathers experience like in this paragraph:
"I often feel the old tug of despair on my sleeve, and the temptation to let it wash over me like it use to: Jack's anguish; his future; our lack of connection. It still gets the best of me from time to time. But on this occasion, the sadness didn't win. It couldn't win. Not after what happened the day before." [Jason Hague, "Let this Carry You", April 26, 2017]
Author: Jason Hague has written a book that will be available in October 2018, about his journey as an autism father for the last five years. It is called Aching Joy: Following God Through the Land of Unanswered Prayer. The subtitle underscores how important faith is in Jason's life, especially in coping with autism.

Social Media: For more information on Jason Hague, follow him at these social media channels.

Special thanks to Jason Hague for being an Autism Light. His storytelling and sharing about autism from the perspective of a father and Christian is a valuable contribution to the autism community. It takes these diverse stories in society to provide living resources to help our world understand more about autism and learn to accept the individuals living with it. We wish Jason Hague all the best in his journey as an autism father and look forward to reading about his blessed family in his blog and writings in the months and years to come.

Autism Light honors diverse heroes to the world of autism.

Sunday, May 10, 2015

Kim Stagliano

Autism Light #396 is Kim Stagliano.
Happy Mother's Day!


Kim Stagliano is an Autism Mother from Fairfield City, Connecticut. Kim and her husband Mark have three daughters, Mia (age 20), Gianna (age 18), and Bella (age 14), who all have autism. Kim Stagliano is an Autism Light for her dedication as an autism mother, advocate, writer, and for being the managing editor of the popular Age of Autism Website.

Kim Stagliano with daughters Mia, Gianna, and Bella
Kim Stagliano graduated from Boston College in 1985, the same year that Autism Light #86  Doug Flutie graduated from Boston College. According to her Twitter Account @KimStagliano, Kim is a Howard Stern fan, muscle car lover, does Shito-Ryu Karate, and is a Matayoshi Weapons student.

The following is a video where Kim Stagliano talks about her three daughters.





Age of Autism: Kim Stagliano started her role as the Managing Editor of Age of Autism, which is the first Daily Web Newspaper of the Autism Epidemic, in 2007. As Managing Editor, Kim Stagliano is responsible for all daily content, technical work advertising, organization, layout and leads a team that helps with comment moderation.

The following is a video featuring Kim Stagliano that celebrates the 10th Anniversary of Generation Rescue and the work of its founder JB Handley.




Kim has extensive writing experience at online websites that include: Age of Autism Huffington Post Debutante BallDallas Morning News Moms Blog , and The Autism File. Kim also speaks at national autism conferences and has appeared on Good Morning America (with the kids!), ABC News, Fox News, The Chicago Tribune, The National Catholic Register, and on blogs around the world (Bio on KimStagliano.com).

Several of her blog posts have gained national attention, including a recent one she did for the Washington Post called "My Three Daughters are Autistic. I Despise Autism Awareness Month". In this article, Kim says:
I dread April, which has been designated as Autism Awareness Month. As mom to three young women with autism – ages 20, 18 and 14 – I eat, sleep and live autism every day. My youngest daughter, Bella, can’t speak a word and was abused on a school bus, leading to a criminal case. My oldest, Mia, had hundreds of grand mal seizures a year from ages 6 to 10. My middle child is wracked with anxiety. For all three, I have to cut their food, tend to their monthly feminine needs, and bathe them. They will need that daily living assistance forever; when I die, a stranger will have to do those things for them. That is why I bristle at the festive tone of April, the suggestion that the circumstances of my daughters’ existences are to be celebrated. For me, this should be a month of solemn acknowledgement and education about a global crisis (Orange You Glad It's April).
Author: Kim Stagliano is the other of the following three books.

Faith:  A look at Kim Stagliano's past experience with special education catechism classes in the Catholic Church can be found in the article by Joseph Pronechen called Special Needs, Sanctifying Deeds - Catechizing the Developmentally Disabled that appeared in the National Catholic Register on October 16, 2009.

Advice to Mothers: Kim Stagliano shared this word of encouragement with Autism Light for autism mothers on Mother's Day, "You are NOT alone - we are a close family even when we differ on cause. Autism Moms will always reach out to help one another because we understand the 'walk'."

Treatment Ideas: Autism Light asked Kim Stagliano what treatments for autism may have helped her family over the years and she said that the most important thing is diet. Kim has her daughters on a gluten free diet. Also, she suggests speech that has an OT and sensory component as having the potential to be helpful.

Passions: Kim Stagliano shared with Autism Light her three most important passions about autism advocacy. They are as follows:
  1. Safety for all - no matter how old.
  2. Prevention - we can't continue at this rate.
  3. Treatment to help with aggression, seizures and other aspects of autism that alienate and are life threatening. 
Social Media: You can follow Kim Stagliano and her work as an author and editor on the following pages.
Special thanks to Kim Stagliano for being an Autism Light. Kim is representative of the dedicated autism mothers who we salute on this Mother's Day 2015. She is also part of a smaller group of autism mothers who have multiple children on the autism spectrum. We wish Kim Stagliano all the best in her role as an autism mother, advocate, and writer. We expect to continue to hear good things in the future about the difference she is making and the light she shines for autism.

Autism Light honors diverse heroes to the world of autism.

Photos: Photos in this post are used with permission of Kim Stagliano.

Sunday, February 1, 2015

Nicholas Bennett

Autism Light #376 is Nicholas Bennett.



Nicholas "Nick" Bennett is a senior at North Hall High School in Gainesville, Georgia who has autism. Nick has served as the manager of his high school basketball team for four years from 2011-2015.  Nicholas Bennett is an Autism Light for his dedication as a student manager in basketball and for accomplishing an amazing goal with making basketball shots from half court. Because of his accomplishment in basketball shots, Nick Bennett will be added today to the Autism Light Sports Page.

As manager of the basketball team since 2011, Nick Bennett has attended hundreds of practices. He started shooting shots from half court to entertain himself at practice. He set a goal to make 1,000 half court shots. His team and coaches helped him keep track of how many he made over the years. In January 2015, Nick Bennett made his 999 shot. 

Basketball Game on January 24, 2015: During halftime of his high school basketball game on January 24, 2015, Nick Bennett made his 1,000 half court shot on the third attempt. Nick also was put in the starting lineup for the game, and made his first shot before being taken out of the game. Nick will go down in the history books at North Hall High School as the only basketball player to have a perfect career shooting percentage. 

Here is a YouTube video of the magical moment on January 24, 2015, when Nick made his 1,000 half-court basket.

Nick Bennett told the Gainesville Times after the game, "This was such an exciting experience. It felt like I was in heaven (Fox59.com, January 30, 2015)."

Here is a news story on Nick Bennett's accomplishment. 

Atlanta News, Weather, Traffic, and Sports | FOX 5

Future Plans: Bill Murphy reported that, "In addition to his love of music, primarily the guitar, Nicholas has a strong desire to share his Christian faith with everyone he meets. Following graduation, [his father] Tim said his son plans to attend the Gainesville Baptist College & Seminary, an accredited ministry with the Hillcrest Baptist Church in Clermont (Bill Murphy, Gainesville Times, January 25, 2015).

Special thanks to Nicholas Bennett for being an Autism Light. Nick's success on and off the basketball court are an example to others of the amazing things that students with autism can accomplish. We wish Nick Bennett the best of success in reaching his goals in the future. May he continue to be an inspiration of an autism life well lived.

Autism Light honors diverse heroes to the world of autism.

Sunday, January 11, 2015

John Dalen

Autism Light #373 is John Dalen.



Photo of John Dalen
John Dalen
John Dalen is a 26 year old from Phoenix, Arizona who has autism. Armed with a deep faith in God, a supportive mother, and a determination to be an entrepreneur, John started a business in 2014 from his home that sells "Essential Energy Bars".  John is comfortable in the role his faith and work provides for him in his business. John Dalen is an Autism Light because of how his faith and business set an example to others with autism that it is possible to make a difference through one's spiritual life and work efforts.

John is nonverbal and uses facilitated speech communication. In order to start his business John took the online course and test to obtain his food handlers card and his home has been licensed by the State of Arizona for food service production. Jane Dalen said about her son, "I know he's intelligent. Just because he can't speak and he might pinch and grab because he was frustrated, I just knew someday he would break through (As quoted in CBS5 Arizona, November 23, 2014)." John Dalen's current business enterprise reflects how far he has come in living and thriving with autism.

The following is a video news story on John Dalen and his business ventures with "Essential Energy Bars".

CBS 5 - KPHO

Education: John Dalen graduated from Greenway High School in Phoenix in 2011. In order to help him with his business, John Dalen took a marketing courses at Paradise Valley Community College in the summer of 2014. This semester he is taking a class on "How to Own and Operate a Small Business". The Rising Entrepreneur Program at Southwest Autism Research and Resource Center also provided help for John to get his business started.

Christian Faith: John Dalen is a Christian and his faith has given him much hope as he has grown up with autism into the adult he is today.  John considers his business as a way for him to be a "Baker for God", and it gives him the opportunity to pray over diverse people who will have the blessing to enjoy his energy bars. Jane Dalen reflected on the roots of her son's spiritual life from it's beginnings to how it is lived out today in the following letter to Autism Light. 
John became a Christian and accepted Jesus as His Savior when he was 8 yrs old. I did not know it till we were able to learn facilitated communication when he was about 13. He was in a Bible class at a local Bible church where the message was presented and he wrote and told me he accepted Jesus then. He loves to attend church and worship time is his favorite. Even though he cannot sing, he will move in rhythm, try to sing, jump at times during his favorite songs and has that relentless joy that only comes from having faith. 
He knows the power of prayer and loves to pray for people. People at church will say how much joy they get from hearing and seeing John worship. And he sits still during the sermon and takes it all in. 
We read from the Bible daily, he prays for people and he does community outreaches to visit people in an assisted living facility, raises money for AZ Hope and a Future by doing their walk, he monthly gives to one of our pastors involved in Reach Global Africa, 10% of his business goes to a prophetic ministry. These are just some of the ways he expresses his faith and hope (Jane Dalen).
Joni Eareckson Tada: Joni Eareckson Tada, a paraplegic who has had a Christian ministry to the disabled community since 1979 called Joni and Friends, is a friend of John Dalen.  John sent Joni a gift of his bars to try along with a note saying, "Joni, I pray before making each batch of bars, that those who enjoy them will be nourished by God in a special way (Joni and Friends Blog, November 3, 2014)."

About the Energy Bars: John Dalen's business product is called "Essential Energy Bars". "Their energy bars are gluten free, low in unhealthy fats and sugars and tied up nicely in an eco-friendly recycled packaging (Adam Longo, CBS5 Arizona, November 23, 2014)."

Availability: John Dalen's "Essential Energy Bars" are currently available at Beneficial Beans Cafe in Scottsdale Civic Center Library and the Union 32 in Phoenix. Because of Arizona licensing regulations for the type of food business John has, his bars can only be sold to people in the State of Arizona. If you are an Arizona resident with an interest in ordering some of these energy bars or you wish to dialogue about John's autism life and business, email John and Jane Dalen at essentialnourishment@cox.net for more information.

Special thanks to John Dalen for shining a light for autism through his example as a man of faith and a business entrepreneur. John's story of success shows the potential that exists within people with autism to make a difference in their work and faith and it is also a tribute to the important role that an autism mother has in supporting her sons dreams. John makes a point of praying over his product as part of his business practice as a Christian. Likewise John is in our prayers and we wish John all the best in his future endeavors as he continues to build and grow his business. John Dalen is truly a blessing to the autism community.

You can search the label Christian at Autism Light and learn about others whose Christian faith helps them in the world of autism.

Autism Light honors diverse heroes to the world of autism. 

Photo: The photo in this post was used with permission of John Dalen.

Saturday, November 22, 2014

Pope Francis

Autism Light #366 is Pope Francis.

Photo of Pope Francis

Pope Francis was born with the name Jorge Mario Bergoglio on December 17, 1936 in Argentina and he is the current head of the Catholic Church, holding the title of the Bishop of Rome. He has developed a reputation as a leader who genuinely cares about those who are less fortunate and have special needs. Pope Francis is an Autism Light for his outreach to those with autism in his role as the faith leader of over 1.2 billion worldwide members of the Catholic Church. Under his leadership the Vatican's health care office held the Catholic Church's first ever global gathering on autism on November 20-22, 2014. As part of this conference Pope Francis spoke about autism and met directly with persons with autism and their parents and doctors.

Michele Arbogast, a mother of a child with autism who works for Autism Speaks in New York, said about Pope Francis, "Pope Francis has changed the dynamics. He reaches out to those in need. Words from the Holy Father will reach the smallest villages, touch hearts, change minds and help people to volunteer and help other families (Religion News, November 21, 2014)."

Here is a video of Pope Francis speaking at the International Conference of the Pontifical Council for Health Care Workers which had as its theme this year, "The Person with Autism Spectrum Disorders: Animating Hope".  Pope Francis spoke to participants at the Persons with Autism Conference on Saturday, November 22, 2014.


The medical conference on autism sponsored by the Catholic Church that Pope Francis spoke at is said by organizers to be "the biggest medical conference of its kind on autism, gathering more than 650 experts from 57 countries (ABC News, November 18, 2014)." Thanks to technology the Pope's words will be heard throughout world and reach people around the world, having an especially influential impact on those who are part of the Catholic Church.

The Rev. P. Augusto Chenci of the Pontifical Council for Health Care Workers said that the reason Pope Francis spoke directly to those with autism at the conference was to "help break the isolation, and in many cases the stigma, that surrounds people affected by autism spectrum disorders (ABC News, November 18, 2014)."

The following are just two examples of some testimonies that were shared on Twitter about the positive impact Pope Francis is having in the lives of those with autism and their families.




Social Media: You can follow Pope Francis on the following social media.
Special thanks to Pope Francis for all he is doing to raise awareness of autism in the Catholic Church around the world. His respectful treatment of individuals with autism is shining a light that those with autism can find a home in a faith community.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo of Pope Francis is from Wikipedia Commons.

Sunday, June 8, 2014

Ka'eo and Jackie Griffin

Autism Light #347 is Ka'eo and Jackie Griffin


Ka'eo and Jackie Maraya-Griffin and sonsKa'eo and Jackie Maraya-Griffin live in Kapolei on the island of Oahu, Hawaii with their two sons. Their oldest son Ka'eo Griffin Jr. has autism. Ka'eo and Jackie Maraya-Griffin are Autism Lights because they spread autism awareness in Hawaii as leaders of New Hope Oahu's autism ministry and as administrators of the Son-Rise Program in their son's autism treatment.

The following is a video of the testimony and song Jackie Maraya-Griffin gave at New Hope Church in Oahu, Hawaii on May 8, 2011 to spread autism awareness.


Christian Faith: Ka'eo, Sr. and Jackie Griffin are Christians and their faith provides them with the confidence that there is a divine purpose for all those with autism. Jackie said,
There is hope and beauty in autism.  You can see it if you choose to.  Every day can be a struggle full of obstacles if we choose to see it that way. These kids are just doing the best they can.  We choose to see our son's challenges as opportunities to express an amazing love and acceptance to him in a way that no one else normally would (Email to Autism Light on 6/4/2014).
Ka'eo and Jackie Griffin have served as the Directors of the Autism Ministry at New Hope Oahu, a Christian church in Oahu, Hawaii.

Musical Theater Performer: Jackie Maraya was a musical theater performer for many years, doing shows such as Miss Saigon in Germany, the 3rd National tour of Rent, and Regional Shows such as the King & I and Flower Drum Song. Jackie took a contract to sing on the NCL Star Cruise Ship in Hawaii where she met, Ka'eo Sr. Jackie gave up being a performer so she could stay home with her son after he receive the autism diagnosis.

Son-Rise Program: The Son-Rise Program was developed by Barry Neil Kaufman and Samahria Lyte Kaufman for their son Raun in 1974. The program continues to be taught by the Autism Treatment Center of America. Jackie and Ka'eo run a home-based, child-centered, play-based Son-Rise Program for their son Ka'eo. They direct a 17 person volunteer team, who they've trained to play with their son Ka'eo in the most loving and accepting way possible, with a goal of connecting with him and building a bridge of trust from his special world into theirs.

The following video is Ka'eo Griffin explaining the great results his son had from the Son-Rise program.




Social Media: You can follow more of Ka'eo and Jackie Griffin's work in these social media areas:
Special thanks to Ka'eo and Jackie Griffin for shining their light for autism in Hawaii. Their son Ka'eo, Jr. is wonderfully blessed to have parents who have walked beside him in his journey by learning principles of the Son-Rise program. And the community of believers at New Hope Oahu is likewise blessed to have such capable coordinators of their autism ministry. If you would like to read other posts at Autism Light on individuals from Hawaii find them by searching the blog for the Hawaii label.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo of Ka'eo and Jackie Griffin and their family is used with permission and taken from their Hawaii Son-Rise website.

Thursday, February 27, 2014

Jaci Velasquez

Autism Light #338 is Jaci Velasquez. 




Jaci Velasquez at the White House
Jaci Velasquez is a Christian and Latin Pop singer from Nashville, Tennessee. Jaci Velasquez became an autism mother in the Spring of 2013, when her 5 year old son Zealand was diagnosed with autism by the Nashville Public Schools, when he started kindergarten. After the ASD diagnosis, Jaci became a spokesperson for autism advocacy and has used her singing talents in fundraising for the autism community. Jaci Velasquez is an Autism Light for how she is an autism advocate in honor of her son Zealand.

Jaci Velasquez was born on October 15, 1979, in Houston, Texas. Jaci is of Mexican, Spanish, French, Scottish, and Arab ancestry (Jaci Velasquez, Wikipedia).

Music Career: Jaci Velasquez has been inspring others through her singing for 20 years and, "she has three Platinum albums, three Gold albums, 16 number one singles, six top 10 singles, and seven Dove Awards (Christian Post, October 17, 2013)." For the latest information on Jaci Velasquez and opportunities to hear her music visit her website at www.jacivelasquez.com.

In this video Jaci Velasquez shares about her son Zealand and how God has spoken to her through being a parent.


Walk Now for Autism Speaks: Jaci Velasquez was named the 2013 spokesperson for the Tennessee Walk Now for Autism Speaks. Her related duties included speaking about her connection to autism and the Autism Speaks organization, performing music at their events in Tennessee, and participating in the ribbon cutting ceremony on October 5, 2013. Jaci Velasquez said about this autism advocacy role, "I am honored and humbled to take on the responsibilities of being the spokesperson of 2013. Although the emotions that I am feeling are unfamiliar and uncharted, I find comfort and unwavering support through my faith, family, and both old and new friends alike (Christian Post, October 17, 2013)."

On My Knees: Here is a clip of Jaci Velasquez as she sings one of her #1 hit songs in a live concert. The song On My Knees was released in 1996 on her debut album Heavenly Place and became the title of her "Best of" Album ten years later in 2006.  Though the song was born over a decade before she became an autism mother, it's message offers hope for Christians in the autism community. When Jaci Velasquez sang this song an Autism Speaks event in 2013, she whispered before singing it, "This year I've actually found a new reason to be on my knees (Power Source Music)."


The Gift of Zealand:  
Jaci Velasquez has said this about her autistic son Zealand, "What Zealand has taught me, and continues to teach me each day is that societal labels don't mean a thing. I see and hear 'genius' when I read and hear 'autistic.' Being diagnosed with autism is to be presented with an original gift. My mission is to harvest the gifts that Zealand has been given, and not overlook them. I don't want to overlook these gifts in an effort to try and 'fix' whatever might seem out of place I WILL NOT overlook Zealand's gift, and I want to encourage everyone else too.. DO NOT MISS THE GIFT! (Power Source Music)."

The following video is of Jaci Velasquez singing a duet in 2013 with Michael W. Smith at a Symphony of Life concert. The featured song is Michael W. Smith's classic, Friends. 


 
Social Media: You can follow Jaci Velasquez on the following social media areas. 
Special thanks to Jaci Velasquez for being an Autism Light. Jaci's music has touched hearts for decades and her faith is now inspiring others as she walks the road of being an autism mother. We wish Jaci Velasquez the best in her music career and in her role as an autism parent. 
Photo: The photo of Jaci Velasquez is in the Public Domain

Autism Light honors diverse heroes to the world of autism.

Tuesday, December 31, 2013

Susan Boyle

Autism Light #329 is Susan Boyle.



Susan Boyle
Susan Boyle is a 52 year old singer from Scotland in the United Kingdom. Susan Boyle gained international fame on April 11, 2009, when she was a sensational success in her singing debut on Britain's Got Talent, where she sang "I Dreamed a Dream" from Les Miserables. After Susan Boyle's surprise debut performance, she went on to become a professional singer and actress. Her debut album was the fastest selling debut album of all time in the United Kingdom.

Susan Boyle revealed in December of 2013, that she had been diagnosed about a year ago with Asperger's Syndrome, a high functioning form of Autism. Susan Boyle is an Autism Light for how the sharing of her diagnosis of autism can help raise understanding and acceptance of autism by adding to the list of autism legends in the music field.

Here is the full clip of Susan Boyle's 2009 audition in Britains Got Talent. Notice how her amazing singing ability surprises everyone. This video version of that night has received over 141 million views on YouTube to date. I personally never tire of watching it again.
 
 
Susan Boyle told the Guardian regarding her autism diagnosis, "I was told I had brain damage. I always knew it was an unfair label. Now I have a clearer understanding of what's wrong and I feel relieved and a bit more relaxed about myself (The Guardian, December 7, 2013)."

In an interview with the International Business Times, Susan Boyle also said, "Asperger's doesn't define me. It's a condition that I have to live with and work through, but I feel more relaxed about myself. People will have a much greater understanding of who I am and why I do the things I do (International Business Times, December 8, 2013)."

The National Autistic Society considers Susan Boyle an example of the 'invisible generation' of adults with autism that went undiagnosed for years (BBCNews Scotland, December 9, 2013).

The following is a news story from CNN about Susan Boyle being diagnosed with autism. 
 
 
The Huffington Post: The Huffington Post spotlighted Susan Boyle in their December 12, 2013 article about influential individuals with autism called These 8 People Will Change the Way You Think About Autism and Asperger's.
 
Movies: Susan Boyle has appeared in the following films.



Music Albums: Susan Boyle's music is very popular in both the United Kingdom and the United States and has sold 14 million albums worldwide (International Business Times, December 8, 2013). Susan Boyle has produced the following music albums.
  • I Dreamed a Dream (2009)
  • The Gift (2010)
  • Someone to Watch Over Me (2011)
  • Standing Ovation: The Greatest Songs from the Stage (2012)
  • Home for Christmas (2013)
Her album I Dreamed a Dream became the fastest selling debut album in the United Kingdom. In addition, to these albums fans in the United Kingdom can hear Susan Boyle when she holds a tour of concerts.

Author: In 2010 Susan Boyle wrote the book The Woman I Was Born to Be: My Story.

Christian Faith: Several of the songs that Susan Boyle has given to the world on her popular albums are about the Christian faith. Susan Boyle credits her Christian faith for helping her cope with grief when she lost her beloved mother Bridget in 2007. She said, "That's what keeps you going. I have my faith, which is the backbone of who I am, really."(Christianity Today, November 17, 2009).

Website: To keep informed of the latest developments with Susan Boyle visit her website at www.susanboylemusic.com or you can interact with other fans at the Susan Boyle Fansite.
 
Wikipedia: You can find out more about Susan Boyle's life on the Susan Boyle Wikipedia Page.

Social Media: You can follow Susan Boyle on the following social media areas. 

Special thanks to Susan Boyle for being an Autism Light. We expect to continue to hear amazing things from her as she shares her gift of music and represents adults with Asperger's through her example and growth.

The photo of Susan Boyle in this post is in the Wikipedia Commons.

Sunday, September 15, 2013

Jack and Rebecca Sytsema

Autism Light #308 are Jack and Rebecca Sytsema.

Article Header for Jack and Rebecca Sytsema Autism Light Number 308

Jack and Rebecca Sytsema are ordained Christian ministers who live in Zeeland, Michigan. They have 3 sons and their two oldest (Nicholas and Samuel) have autism. Their youngest son Trey is developing typically. Autism Light first became acquainted with the Sytsema's ministry in December, 2011, when learning of the tremendous impact their ministry called Children of Destiny had made on Julia Boyd, Autism Light #114. Jack and Rebecca Sytsema are Autism Lights because of how their ministry encourages the faith of autism parents and gives them daily hope and encouragement.

The Children of Destiny website lists this description of how Jack and Rebecca Sytsema approach their life with autism:
We first became interested in autism when our then 2-year-old son, Nicholas, was showing signs of developmental delay coupled with intestinal difficulties in mid 2000. In January, 2001, he was diagnosed with autism. We believe in the power of prayer and believe that God’s hand is firmly on Nicholas’ life. We have implemented several other interventions for Nicholas, including the gluten- and casein-free diet, several biomedical interventions, and an intensive program of Applied Behavior Analysis.
While each intervention has helped Nicholas come to new levels of success, we firmly hold to the belief that the most powerful intervention we have brought into our son’s life has been to give him over to God and Him to order our steps concerning Nicholas. Although the path has been a difficult one, we have seen steady progress as God works new miracles day by day. God has yet to disappoint us in any area with which we have fully trusted Him (Read More at the About Us Section of the Children of Destiny Website)!

Jack Sytsema:  Jack Sytsema is currently the Executive Vice President of Finance for the International Child Development Resource Center (ICDRC) and Creation's Own (CO). The ICDRC is non-profit organization founded by Dr. J. Jeff Bradstreet in order to foster treatment, education, and research to cure autism. Jack Sytsema received his Bachelor's Degree from Calvin College and his Master of Divinity from Fuller Theological Seminary

Rebecca Sytsema: Rebecca Sytsema is the Director of Children of Destiny. She is an autism mother and has also co-authored eight Christian books. You can see a list of the books she has written at the Book List on the Children of Destiny Website.

Children of Destiny: Children of Destiny is a faith based ministry that has been in operation for the past 11 years. Their website says they are Defeating Autism in the Name of Jesus. Their mission is as follows:
Children of Destiny is a Christian ministry dedicated to bringing God's hope, life, and restoration to families and individuals struggling with autism and related disorders through the development and promotion of effective prayer, inspirational messages, and spiritual support (Read More at the Introduction of the Children of Destiny Website).
Children of Destiny lists on their Website that they provide these spiritual services and free materials:
To learn more about Children of Destiny visit their website at www.childrenofdestiny.org.

Unlocking Autism: Jack and Rebecca Sytsema are on the Honorary Board of Advisors for Unlocking Autism. Unlocking Autism is an autism organization that was founded in 1999.

Social Media: You can follow Children of Destiny at the following social media areas:
Special thanks to Jack and Rebecca Sytsema for being Autism Lights. Their ministry of encouraging prayer in and for the autism community is a shining light for those that receive help from their Christian faith to cope with autism everyday. Christian autism families and churches are blessed to have these faith-based autism resources available from Children of Destiny. We wish Jack and Rebecca Sytsema all the best in their ministry and in serving as autism parents to two boys with autism.

Autism Light honors diverse heroes to the world of autism.

Saturday, April 27, 2013

Faith Jegede

Autism Light #275 is Faith Jegede. 


Faith Jegede is from London, England and is an autism advocate by being a speaker, writer, and blogger. Faith Jegede's brothers Remi and Samuel both have autism. Faith Jegede is an Autism Light because of the extraordinary way in which she is spreading autism awareness through the perspective of a sibling. Faith Jegede said in her TED talk called What I Learned from My Autistic Brothers, "I can not remember the first moment I encountered autism but I cannot recall a day without it."

The following is a video that Faith Jegede has on her blog that she did for Autism Awareness Month - 2013.


Education: Faith Jegede will be starting her PhD in Communication at American University in Washington D.C. in August. She earned her MSc in International Management at the Henley Business School, University of Reading and her BA (Hons) in International Politics at the University of Surrey, UK.

Here is a talk for TED that Faith Jegede did in 2012 called "What I've Learned from My Autistic Brothers."


Blog: You can read The Faith Jegede Blog to keep track of Faith's blogging. In her blog Faith Jegede shares her thoughts and personal opinions on topics ranging from reflections on life, favorite quotes, original poetry, politics, and her Christian faith. On her blog she mentions admiring the poetry of Joshua Bennett, who was Autism Light #253. Faith Jegede also has shared personal thoughts about her brothers on her blog. Here is two excellent blog posts that Faith Jegede wrote about where she mentions her relationship to her brothers who have autism.
To Her Brother Remi: If I were to communicate one thing to you, it would be that you are extraordinary. Your brilliance is beyond our conceptualization and you are worth more than you'll ever be able to realize. In you lies a gift. In you lies a lesson. In you lies a solution. In you lies love (Source).

100 Things to Be Thankful for in 2010: 5. I'm #thankful for my brothers. They often drive me nuts but always bring me joy. I'm excited to see what God will do in both of them (Source)."
Radio Show: Faith Jegede is the creator, presenter, and producer of a radio show called "What's in Yours?" (Source).  Faith Jegede's radio show airs for an hour on Tuesdays and Saturdays and centers around her getting to know guests by digging deep into their bags. You can access episodes of Faith Jegede's show at the Premier Gospel Website.

Twitter: Faith Jegede is very active on Twitter as @FaithJegede. Here are two of her inspirational tweets about life.
Social Media: You can follow Faith Jegede on social media at the following areas. 
Special thanks to Faith Jegede for spreading autism awareness and being a dedicated sister to her two brothers with autism. Faith Jegede is setting a wonderful example of advocacy for other young people who have siblings with autism. We look forward to continuing to hear amazing things about Faith Jegede's autism awareness advocacy in the years to come. If you enjoyed this post you may wish to read about the other Autism Lights with the label Siblings. These people share the special perspective in their story of having a sibling with autism.

Autism Light honors diverse heroes to the world of autism.

Saturday, April 13, 2013

John Schneider

Autism Light #271 is John Schneider.



John Schneider is an actor and musician from Agoura Hills, California who is probably best known for his role as "Bo Duke" in the 1980's television show The Dukes of Hazzard.  John Schneider has a personal reason for having a passion for autism causes. John Schneider's son Chasen has the form of autism known as Asperger's. John Schneider is an Autism Light for his role as an autism father, his advocacy for autism and for helping to show how actors can help the cause of autism. 
 
Actors for Autism: The following is a Public Service Announcement that John Schneider did for Actors for Autism.  



Autism Speaks: John Schneider has worked with the autism organization Autism Speaks. John Schneider said, "My involvement is raising funds for their cause as well as speaking to people, firsthand, about the experience of raising a wonderful young man who is among those on the spectrum (Source)."

Acting Career: John Schneider has a prolific acting career. His first and most famous role was as Bo Duke in The Dukes of Hazzard, which started when he was just 18. He also starred in 100 episodes of Smallville, where he played Jonathan Kent, the father of Superman.  In addition, he had a recurring role on Dr. Quinn: Medicine Women. You can view his complete list of acting roles on his IMDb Webpage

The following is a video of John Schneider singing the song "Just The Good Ole' Boys" with Tom Wopat in the last performance at Nashville Now. 




Music Career: John Schneider is also a country music singer who has recorded over 10 albums. In 1985, his album, A Memory Like You featuring the song What's a Memory Like You (Doing in a Love Like This) was #1 on the charts. 

Children's Miracle Network:  In 1982, John Schneider co-founded with Marie Osmond the Children's Miracle Network to meet the needs of children while they are receiving hospital care.

Larry King Live: The following video features John Schneider with some other entertainers talking about autism on Larry King Live in 2013.

John Schneider explained that he is involved in charities that are important to him personally:
That is why I helped start the Children's Miracle Network 25 years ago. A child's experience while in a hospital happens to really mean something to me. How kids on the autism spectrum are treated and how those around them are educated about their specifics is truly important to me (Source).

Christian Faith: While living with Johnny and June Cash, John Schneider converted to Christianity (Source). Schneider continues to be  practicing Christian to this day. John Schneider also starred in the Christian movie, What Would Jesus Do?

FaithWorks Productions: John Schneider founded FaithWorks Productions in 1995 to produce family oriented films and media. Over the years many films have been produced by FaithWorks. In 2012, John Schneider produced two pro-life films in the same year (Paul Bond, Hollywood Reporter, March 29, 2012).

Advice to Parent about Autism: John Schneider has given this advice to parents of those on the autism spectrum.
Autistic kids, as well as adults, are amazing people who we can learn from. I believe the best thing you can do is to help them focus on something they are truly interested in, and you will be amazed at what they can accomplish! For example, my son, Chasen, was interested in both sport and history of body building when he was eleven. He focused and was published in two separate magazines on the sport with the byline "But what do I know...? I'm just a kid!" (This quote was taken from a website on Internet that has a broken link).
Additional Information: For more information on John Schneider visit these websites.
Social Media: You can follow John Schneider in the following social media areas.
Special thanks to John Schneider for all he does for those with autism. John Schneider's work as an Autism Light is an important help to the autism community.  

Autism Light honors diverse heroes to the world of autism.

The photo of John Schneider in this post is in the Public Domain and is attributed to Phil K. Onstantin.

Sunday, February 24, 2013

Vana Thiero

Autism Light #261 is Vana Thiero.












Vana Thiero is a film producer and single mother of two boys who have autism, Carter and Bakary. She lives in Los Angeles, California. Vana Thiero is developing a documentary series of 5 parts called My Thiero Boys to show what real everyday life with autism is like in her family. Vana Thiero is an Autism Light for her dedication as a mother and autism advocate, and for the constructive impact her films on autism can make towards greater autism awareness in society.

Education: Vana Thiero earned her BFA and her MA in Communications from Western Michigan University.

Film Experience: In 1987 she partnered with producer Jim Heyden to produce commercials and instructional music videos. Vana Thiero worked for CNN from 1994-2002, and won an Emmy for their "9/11 coverage." She also produced the documentary "Low Riders the Real Story" and edited for "Inside Edition" and BET's "Comic View".

The following is a KCAL9 News story that featured Vana Thiero and her autism awareness efforts.


Faith-Based Inspiration: Vana Thiero has received blessings from her families faith based involvement with In His Presence Church. The church is featured in the My Thiero Boys video series.

Sears Family Pediatric: Dr. Robert W. Sears provided some of his insight in the My Thiero Boys project.

Autism Quote: Vana Thiero gave this word via Autism Light to encourage people to be autism advocates.
Advocate! The future of autism depends on an expanded consciousness regarding how, we as a global society, plan to care for ASD individuals when parents are no longer around. Get loud get creative. Educate others regarding how they may employ our children and let's be confident to teach our children how to earn an income doing what they do best. Push the kids to succeed the same as we do with our typical kids. Expect Success!!!
Here is the trailer to the first video in the My Thiero Boys film series.


Vana Thiero writes on her website about the mission of the My Thiero Boys documentary to reach the broad autism community. 
The mission of "My Thiero Boys" is to create awareness regarding the needs, behaviors, and lifestyle inherant in the autism culture to better equip the world, helping all who view the film(s) understand and learn how to include the autism culture into society both socially and professionally. The autism culture is made up of children and adults who are diagnosed with autism as well as relatives, friends, educators, therapists, medical professionals, attorneys, politicians, advocates, neighbors, etc: those whose daily lives are impacted by autism (Source).
Contact: For more information on the My Thiero Boys documentary email info@mythieroboys.com.

Social Media: You can follow My Theiro Boys and Vana Thiero at the following social media pages.
Special thanks to Van Thiero for making a documentary that can share with the world what autism is like. Van Thiero is shining her light for autism as a mother and a film maker. 

Autism Light honors diverse heroes to the world of autism.

The photos in this post were used with the permission of Van Thiero