David Kot

Autism Light #446 is David Kot.

David Kot is a comic book script writer who founded Face Value Comics, a non-profit which raises autism awareness and featured the world's first comic book hero with autism. David lives in York, Pennsylvania with his wife Angie and four children. In addition to his own clinical diagnosis as an adult with Asperger's, his young step-daughter also has autism. David Kot is an Autism Light for his influential efforts to raise autism awareness through his comic book enterprise and as a self-advocate.

The following is a video where David Kot explains how Face Value Comics is intentional about raising autism awareness.

Face Value Comics: David Kot and Angela Kot created Face Value Comics, which was legally incorporated as a non-profit organization in 2011 and is presently a 501 (c) 3 non-profit organization. According to their website, "Autism at Face Value practises 'comic awareness' and employs the use of comic books and educational toys to publicly demystify Autism Spectrum Disorders (Autism at Face Value - About Us)."

Some of the accomplishments of Face Value Comics include:

• Introducing the character "Michael" who is the first comic book super hero with autism.
• Having a third party medical journal review their work for their therapeutic value to children.
• Advising the Dover Area School District on new special needs curriculum based on our use of facial feature recognition helps us maintain our non-profit status.

David Kot says,

"Comic book author and pop-icon Stan Lee wrote Spiderman when he was 40 years old. I debuted Face Value Comics #1 a year earlier than my role-model. Since this time, we have been on the nation’s largest news network, reviewed in a medical journal, and outsold some popular titles. Our comic has been nominated and won two international awards for Children’s Literature (Ireland, Canada) and enshrined in the National History of Disability History in New York. We have international print and distribution for our comics. Additionally, we hold the copyright on our work, and are proud to give kids heroes like themselves. In the future, we have many great plans."

His plans for Face Value Comics in the future include:

• Developing public school special needs curriculum with the Dover Area School District for a net surplus, insulated against legislative budget cuts, and without levying a single dime to the typical taxpayer;
• Sensory-friendly action figures of our heroes, with flexible pieces (i.e. silk cape or wool cape), designed to calm children who play while they play;
• Printing comic books with 3D features, like raised facial expressions to literally feel emotions, which also opens comic books to the low/no-vision community;
• Visiting the U.S. Congressional Autism Caucus by (Mike Doyle’s) invitation;
• Continued issues of comics, including special guest artists and authors;
• Advocating and teaching young people and adults about living with autism; and
• Finishing my doctoral research as my health and time allows.

Copyright 2016 - Face Value Comics

Author: To date David Kot has published three comic books labeled Face Value Comics #1, #2, and #3. Face Value Comics #4 is in the production phase.

Ordering Information: You can order print copies of comics by Autism Face Value at their page on Indyplanet. Digital copies, including a pay-what-you-want price option on Issue #1, are available at Drive Thru Comics.

Education: David Kot has the following educational background.

David Kot

• In 1997 he complicated his undergraduate bachelor of science degrees earning a double major in political science and sociology at the University of Pittsburgh - Johnstown. 

• Since 2006 he has been studying at Capella University. He has earned a Master of Science in Human Services (Psychology) and did his graduate research in Self-funding community clinics to include self-injurious clients, in respect to billing, coding, and clinical interventions. 

• David Kot is expected to earn his Doctor of Philosophy, Psychology in 2016 from Capella University. His PhD research focus has been Autism and multicultural, nonverbal communication strategies that promote compassion and empathy. 

Blogger: David Kot writes a blog as part of his advocacy on his website. The following two articles are representative of some of the content.

• Our Code of Ethics in Family Friendly Content
• Fiscally-Conservative Self-Funding Public Education Reform for Special Needs' Students

#WeAut2Vote Campaign: David Kot has been working hard to advocate for making voting accessible to people with autism in the Winter and Spring of 2016. He has solicited the support of ALL Pennsylvania senators and support is growing throughout the United States. His advocacy includes helping individuals with autism to:

1. Register to Vote
2. Identify their Local Polling Place
3. Use Absentee Ballots When Their Disability Prevents Typical Voting Inclusion.

The York Dispatch wrote an article on David Kot's efforts to get out the autstic vote (Greg Gross, The York Dispatch, March 28, 2016).

Encouragement to those with Asperger's: David Kot offered these words of encouragement to others with Asperger's.

"In a world run by neurotypical people (i.e.: people without autism), some comforting words by George Bernard Shaw and the Kennedy family: 'You see things; and you say, ‘Why?’ But I dream things that never were; and I say, ‘Why not?’' By this, I encourage people living with autism to remember how we brought you a comic book hero with autism, not industry giants like DC or Marvel (Disney) Comics. I am just a guy living in a small town with a dream, limited resources, but with great supports who love and value me as much as any work I have done or may yet do (David Kot)."

David Kot provided this summary of his autism advocacy and his appreciation for people who assist him in shining his light for autism.

"In summary, I hope any other person – with or without autism – may look to what I have done and replicate something similar, for their own advocacy on any number of deeply-concerning social topics that get bypassed by mass media monopolies, and for the benefit of younger readers in the future. One may say that writing a comic book has launched autism advocacy through national news coverage, educational reform based on science with economical responsibility, address of congressional representatives, and review in a legitimate medical journal. Yes- a comic book paved the way. I think about our success as one average guy’s science-fiction story (equally heavy in both parts ‘science’ and ‘fiction’) that makes people believe in fantastic opportunities – in equality - like those events described. I could not have done any of these things without so many long evenings with my wife, Angela, and our artist, Sky Owens. He patiently taught me how to write for comic books, and his thirty years’ experience in the comic book industry shows on the static page. Angela listened to my writings, and offered many great changes from her views as a mother and wife living with autism. She also has a very active imagination! Overall, I am just a man. However, I also have great supports and people who love me. I never thought our comic book would be published in a medical journal before my own doctoral defense. We must never stop believing we deserve good things for ourselves or our children, who need our collective best (David Kot)."

Social Media: You can follow Face Value Comics at the following social media areas.

• Facebook Page of Face Value Comics
• Twitter @FaceValueComics

Media: You can read more about David Kot's autism advocacy in the following media features. 

• Truth Atlas interview with Director Nick Poppy (YouTube)
• Blog by Peter Barnes and the LearnFast Group
• Interview with Hallie Jackson and The NBC Nightly News
• Interview with Dr. Rob Melilo (16:47 minute spot on YouTube)
• Review by Ernst VanBergeijk of the Journal of Autism and Development Delay
• Interview by Nicole D'Andria of The Fuse of Entertainment

Special thanks to David Kot for being an Autism Light through his amazing talent in comic book script. Face Value Comics is an independent company that can offer hope and encouragement to the autism community as well as educate others about this growing group of people in our society. We wish David continued success in his endeavors as a self-advocate and his role as an autism father.

Autism Light honors diverse heroes to the world of autism.

---

The photo of David Kot was used with permission of David Kot. Comic book images are copyright by Autism at Face Value (2016).

Gavin Joseph

Autism Light #424 is Gavin Joseph.

Gavin Joseph is a young man who has Asperger's and ADHD. He graduated in 2015 from Wesclin High School in New Baden, Illinois. Gavin was a victim of bullying and physical violence in late June 2015. Gavin Joseph is an Autism Light because he chose to forgive his attackers and instead of pressing charges raise autism awareness.

In late June 2015, Gavin Joseph was tricked by some boys that he thought wanted to be his friends and instead they physically assaulted him to teach him a lesson. The following is a news story on what happened to Gavin Joseph and his decision not to press charges.



Gavin's mother Cortnie Stone explained on her Facebook what happened.

Some kids were talking about how it’s weird that he’s always by himself, attending events alone and watching people, and that it was “creepy” how he wanted to be friends with people he didn’t know. 

Another kid that overheard that conversation decided to take matters into his own hands and become judge and jury, and this is the result of that. He didn’t ask questions, didn’t get to know Gavin, never met him, and didn’t give him a chance to leave. 

He was called to meet someone, surrounded by people he didn’t know, choked, punched, and left laying on the pavement so he would ‘learn his lesson’. 

Gavin is fine. He has mild concussion, a bruised oesophagus, the tip of his nose fractured, and hematoma in his eye, but nothing permanent. 

He did not press charges, but requested their community service be disability related, that they write a paper on Asperger’s, and that they watch a 20 min video statement he taped while their families were present so they could see the damage they did and hear the event from his perspective (The Independent, July 6, 2015).

Sarah Goucha writer at the Huffington Post summed up the noble act that Gavin Joseph did in this way, "A gang of bullies beat up teenager Gavin Joseph, who has autism, for being different. Yet the only thing truly different about him was his response (The Huffington Post, July 7, 2015)."

Gavin Joseph makes history at Autism Light as the subject of the 100th post featured on the blog about someone with autism. Links to the other related posts are referenced on the "Has Autism" page at Autism Light.

Special thanks to Gavin Joseph for being an Autism Light and showing forgiveness toward those that wronged him. In doing so Gavin has not only raised awareness of bullying and autism, but he has shown the true spirit of the autism community as reflected in the desire to improve the world one person at a time. We wish Gavin Joseph all the best in his life.

Autism Light honors diverse heroes to the world of autism.

Danielle Jacobs and Samson

---

In Memoriam
Updated on February 7, 2016

---

Danielle Jacobs (Autism Light #414) died on February 4, 2016 (CBS News, Woman Killed by Police Had Viral Autism-Awareness Video, February 5, 2016). This post will remain at Autism Light in her memory. She will be placed on the Autism Light Memorial Roll and remembered at the Autism Rest blog.

---

Autism Lights #414 are Danielle Jacobs and Sampson. 

Danielle Jacobs and her dog Sampson are intertwined in this story, so it is fitting that they are both named an Autism Light together. Danielle Jacobs is 24 years and has the form of autism known as Asperger's. Sampson is her 4 year old rottweiler that she acquired from HALO Animal Rescue in Phoenix. Danielle Jacobs and her dog Sampson are Autism Lights because Danielle opened herself up by sharing a video of her experience on YouTube where Sampson as a true canine hero comforts her and alerts her to self harm.

Danielle shared the video of Samson comforting her during a meltdown on YouTube and it received over 5 million views on YouTube and was one of the Top Ten Videos in all of YouTube for the week of June 2, 2015.

Danielle Jacobs wrote this description to the video that she uploaded to YouTube. "This is what having aspergers is like. Please no negative comments this really happened and it's not easy to open myself and share what it's like on a daily basis. This is what's considered a meltdown. Yes Samson is alerting. I trained him to alert to depressive episodes and self harm not both but he alerted. It appears the response is late but it's actually supposed to be as I'm coming out of the meltdown as I tend to have a panic attack after."

Danielle Jacobs told Buzzfeed News that after she got Sampson she "immediately began training him for service work for Asperger's syndrome, PTSD, TBI, and anxiety disorder. He alerts to meltdowns, anger, depressive episodes, flashbacks and nightmares, stimming, provides balance and counterbalance, and alerts to panic attacks (Buzzfeed News, June 16, 2015, Alan White, An Autistic Woman Has Bravely Shared a Video of Her Dog Comforting Her)."

Sampson has successfully passed his CGC (Canine Good Citizen) and CGCA (Canine Community) tests and PAT (Public Access Test) (Buzzfeed News, June 16, 2015, Alan White, An Autistic Woman Has Bravely Shared a Video of Her Dog Comforting Her).

Susan Dunne wrote an opinion piece for the Autism Daily Newscast about Sampson being a hero. She describes Sampson's critical role as an autism therapy dog as follows:

Sampson typifies what makes animals so special - he does not intervene with reasoning (pointless at this stage anyway), with pleading or restraint, nor does he ignore it and walk away. He persists, he stays with his owner, lets her know that he is not giving up on her even though she may at this point have given up on herself. He is there for her, bringing a safe warm presence into a broken place. He reaches across the despair and hurt but doesn't try to control it. He is in there with her for as long as it takes and he wins her round as she accepts his presence and reaches out to hug him (Autism Daily Newscast, June 17, 2015, Susan Dunne, Opinion: Self-harm Video Shows Heroism of a Dog).

You can read more about Danielle Jacobs and Samson at these online stories.

• Autism Speaks, June 16, 2015, This Woman Bravely Shares What It's Like to Have a Meltdown
• CBS News, June 16, 2015, Service Dog Calms Asperger's Meltdown
• The Independent, June 22, 2015, This Is What Having Asperger's Is Like

Social Media: Danielle Jacobs is increasing autism awareness through the videos on her personal experiences that she has uploaded to her YouTube Channel.

Special thanks to Danielle Jacobs for having the courage to share this video so that millions can learn about autism and the role a therapy dog can have. Danielle Jacobs is representative of the many people with autism that are trying to raises awareness of their condition. Sampson is likewise a fine dog to represent the many therapy animals who are unsung heroes.

Autism Light honors diverse heroes to the world of autism.

Talisman Camp Programs

Autism Light #407 is Talisman Camp Programs.

Talisman Camp Programs are located at 64 Gap Creek Road in Zirconia, North Carolina. They offer camp programs for people affected by autism. Talisman Camp Programs are an Autism Light because of the difference their program has been making in the lives of young people with autism for the past 35 years.

Talisman Programs opened in 1980 and they offer summer camps for young people ages 8 to 22 who have learning disabilities, ADD, ADHD, Asperger's Syndrome, and high-functioning autism. They also offer a year-round boarding school. The camp is accredited by the American Camp Association.

The following is a promotional video about the difference Talisman Programs have made for autism families and individuals.

Vision: Talisman Camp is co-owned by Douglas Smathers, who is the Executive Director and Linda Tatsapaugh, who is the Operations Director. The Talisman Camp articulates their philosophy of camping this way:

At Talisman Programs for children with autism or ADHD, we believe that every child wants to do well, and that every child has unique strengths, struggles and outlooks on life. At our camp, these beliefs require a special outlook and special tools. In order to help all of our campers reach their potential, we must meet them as individuals, and not attempt to fit them into one mold. Therefore, we use a variety of tools to guide our campers as they strive to meet their objectives in socially appropriate and fulfilling ways (TalismanCamps.com, Philosophy of Programs).

Social Media: You can follow Talisman Camp at the following social media areas.

• Facebook Page for Talisman Programs
• Twitter @Talismancamp

Contact Talisman: To learn more about Talisman Programs visit their website at talismancamps.com or call 828.697.6313. You can also email info@talismancamps.com.

Special thanks to Talisman Programs for being an Autism Light. They are an example of how programs in a camp setting can change the life of individuals with autism. We hope that camps like Talisman that are built for campers with autism will thrive and be common and accessible to more and more families around the world.

Autism Light honors diverse heroes to the world of autism.

James Durbin

Autism Light #400 is James Durbin.

James Durbin was born on January 6, 1989. He is a musician from Santa Cruz, California. James Durbin has the form of autism known as Asperger syndrome and he also has Tourette syndrome. James Durbin rose to prominence in the entertainment and music world when he finished in fourth place on the tenth season of American Idol in 2011. James Durbin is an Autism Light for his anti-bullying advocacy and for the way in which his music has encouraged others with autism to reach for their dreams. In fact, James Durbin is a role model specifically to Autism Light #159, Michael Korins.

On His Autism: Kerry Magro, who was Autism Light #119, interviewed James Durbin in the Spring of 2014. James Durbin said this about his autism and the opportunity to be an autism advocate.

It makes me really proud. Proud to have Autism. Proud to be overcoming this obstacle. And especially proud to be showing the world that regardless of what label you're given, regardless of what diagnosis you have, you are not fully disabled of your dreams. It is up to us to be that difference. Spread the word & make it known that we are just as capable as everyone else. More so I think. We just need a little more time, a little extra help (James Durbin as quoted by Autism Speaks, April 8, 2014). 

Here is a video of James Durbin singing the song in the finals of American Idol in 2011 called Don't Stop Believin. 

Music: James Durbin has released the following recorded music.

• In 2014 James Durbin produced his Album called Celebrate. His website states, "It's this musical juxtaposition of rock and pop that Durbin offers up on his eagerly awaited sophomore album, CELEBRATE.

• In 2011 James Durbin produced his rock Album called Memories of  a Beautiful Disaster.

Family: James Durbin married his wife Heidi Lowe on December 31, 2011. They have a son named Hunter and a daughter Kinzee Cuz.

Anti-Bullying Message: James Durbin is a spokesperson for the Be a STAR Alliance. He shares an anti-bullying message and has revealed that he was a victim of bullying growing up. James Durbin said, "If you're being bullied the best thing you can do is to tell someone. It's also, and I know from experience, it's the hardest thing to do (CBSNews.com, March 19, 2012)."

The following is a video of James Durbin being interviewed by Dr. Drew about his autism and Tourette's.

Contact: To contact James Durbin use the following email.

• Booking Inquiries: Jamesdurbinbooking@gmail.com
• Press Inquiries: KPPublicityGroup@gmail.com

Social Media/Websites: You can follow James Durbin on the following social media pages and websites.

• Facebook Page for James Durbin
• Google Plus for James Durbin
• Instagram Page for James Durbin
• Twitter @DurbinRock
• Official Website of James Durbin
• Wikipedia Page for James Durbin
• YouTube Channel for James Durbin

Special thanks to James Durbin for being an Autism Light. James Durbin has a special talent as a singer and guitarist. We expect to continue to hear good things about James Durbin's music career and influence as an autism role model in the future.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo of James Durbin is in the Public Domain.

Roxy the Pitbull

Autism Light #395 is Roxy the Pitbull.

Roxy/Courtesy of Best Friends Animal Society

Roxy is a 60 pound female Pit Bull Terrier who was adopted by Joey Granados and his family. She was adopted on the Saturday after Thanksgiving in 2014 from the Best Friends Animal Society shelter in Los Angeles, California. Joey is a 14 year old who has Asperger's Syndrome. Roxy is an Autism Light because her relationship with Joey Granados helped him hug his mother for the first time and improve in his social relationships.

The following is a video about the impact Roxy has had on Joey Granados and his family.

Amanda Granados told TODAY.com, "For all those years, he wouldn't hold my hand, he wouldn't hug me--it was all part of the autism--but this dog has taught him how to give and show affection. He holds my hand now! He hugs me! The first time I got a kiss on the cheek was when Roxy came home (TODAY.com, Laura T. Coffey, April 27, 2015)."

Joey Granados himself described the impact that Roxy has had on his life when he said, "I didn't have too many friends growing up, but then we got Roxy and I've been able to make friends ever since (TODAY.com, Laura T. Coffey, April 27, 2015)."

Special thanks to Roxy for being an Autism Light. Roxy is representative of the thousand of autism therapy dogs around the world who are making life easier for individuals with autism. We wish Roxy and Joey many years of friendship.

Roxy will be added to the Autism Light Animal Page today. Roxy is the second Pit Bull breed to be featured on Autism Light. The first was Karma. That means the Pit Bull breed at this time is second only to the Golden Retriever in being highlighted on Autism Light.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo of Roxy was used with permission of the Best Friends Animal Society, an animal shelter with a no-kill mission.

Ricardo Adair

Autism Light #352 is Ricardo Adair. 

Ricardo Adair is a 25 year old man from Mexico. He was diagnosed with Asperger's Syndrome at 18 years of age and according to Mexican law this meant that a parent or guardian would make all of his decisions the rest of his life. Ricardo Adair Coronel Robles is the first Autism Light from Mexico because he brought his petition to the Supreme Court of Justice of the Nation of Mexico and won a legal victory that will help many with autism in Mexico gain more independence in the future.

Ricardo Adair started his case in 2011 seeking to make key decisions in his life without parental consent. Mexican law required that a person with autism or Asperger's have legal documents signed by a parent or legal guardian.

Ricardo's mother Leticia Robles supported his legal efforts for equal rights as a person in Mexico. She had told the BBC Mundo in 2013, "Many children have different levels of disability. Some need more support, some need less. This should be about giving to each one what they need (BBC News, Mexican Man with Asperger's Syndrome Wins Court Battle)."

Ricardo Adair told the Supreme Court, "I want to be allowed to decide what to do, where to go, where and with whom I want to live or travel, where to work or study (BBC News, Mexican Man with Asperger's Syndrome Wins Court Battle)."

In October 16, 2013 the Supreme Court of Justice of the Nation of Mexico ruled in Ricardo's favor 4 votes to 1. Although they did not immediately declare Ricardo Adair competent for making his own decisions, the court ruled that a judge of the family will decide which rights and responsibilities Ricardo Adair is able to take on himself. When you listen to it you can go to the captions option on the video and turn on the translation option. You can then set it to see captions of the news story in any language.


The ruling from the Ministers of the Supreme Court has broad applications, and means that in the future a judge will determine on a case by case basis to what extent other individuals in Mexico with autism, Asperger's, or other disabilities are able to take over their own decisions (RadioBrithispana.com).

Special thanks to Ricardo Adair for lighting the way for those with autism in Mexico. The legal victory that Ricardo won will make it easier for others with autism who are facing the same desire and capacity for independence.

Autism Light honors diverse heroes to the world of autism.

Daryl Hannah

Autism Light #350 is Daryl Hannah.

Daryl Hannah is a 53 year old actress and producer who has had roles in over 80 films since 1978, including playing Madison (the mermaid) in the 1984 movie Splash. Daryl Hannah revealed in September, 2013, that she was diagnosed with Autism/Asperger's Syndrome as a child. She was born on December 3, 1960. In recent years she has been an environmental activist and has homes in Colorado and California. Daryl Hannah is an Autism Light for raising autism awareness as a celebrity figure by publicly sharing about her experiences with autism and how it impacted her life.

The following is an ABC News story from 2013, related to when Daryl Hannah revealed for the first time that she has autism.



When she was diagnosed with autism as a child, doctors recommended medication or that she be put in an institution.  Daryl Hannah's mother, Susan Metzger, refused to accept that fate for her daughter. Her mother pulled her out of school for a year and worked with her at home (The Autism Site, Daryl Hannah Opens Up About Her Autism).

Actress: Having autism has made Daryl Hannah shy away over the years from promoting her career through interviews and publicity performances. She feels more comfortable out of the limelight. Daryl Hannah told People Magazine in September, 2013, "I've never been comfortable being the center of attention. It freaked me out (see video above)." Nevertheless, the talented actress has been in entertainment for parts of five decades and has had roles in over 80 films since 1978. Some of her more well-known films include Blade Runner, Splash, Roxanne, Wall Street, Steel Magnolias, and Kill Bill. You can see a complete list of films she has acted in at Daryl Hannah's IMDB page.

The following is an interview Dan Rather did with Daryl Hannah about her autism.




Environmental Activist: Daryl Hannah is passionate about the environment. She has been an activist in recent years for environmental issues in America. Her simple homes in Colorado and California are off the grid.  Daryl Hannah "leads an eco-friendly lifestyle, pumps well water and relies on solar power at home (Huffington Post, Sept. 27, 2013)."

Wikipedia: You can learn more about Daryl Hannah at her Wikipedia page.

Social Media: You can follow Daryl Hannah at the following social media pages.

• Twitter @dhlovelife (Verified Account)
• Facebook Page for Daryl Hannah

Special thanks to Daryl Hannah for being an Autism Light. As an exceptional actress, Daryl Hannah's life story is a testimony that some people with autism can be very successful at acting. We wish Daryl Hannah the best in the future and look forward to her future projects in the entertainment industry. The autism community appreciates hearing her experiences with autism.

Autism Light honors diverse heroes to the world of autism.

Susan Boyle

Autism Light #329 is Susan Boyle.

Susan Boyle

Susan Boyle is a 52 year old singer from Scotland in the United Kingdom. Susan Boyle gained international fame on April 11, 2009, when she was a sensational success in her singing debut on Britain's Got Talent, where she sang "I Dreamed a Dream" from Les Miserables. After Susan Boyle's surprise debut performance, she went on to become a professional singer and actress. Her debut album was the fastest selling debut album of all time in the United Kingdom.

Susan Boyle revealed in December of 2013, that she had been diagnosed about a year ago with Asperger's Syndrome, a high functioning form of Autism. Susan Boyle is an Autism Light for how the sharing of her diagnosis of autism can help raise understanding and acceptance of autism by adding to the list of autism legends in the music field.

Here is the full clip of Susan Boyle's 2009 audition in Britains Got Talent. Notice how her amazing singing ability surprises everyone. This video version of that night has received over 141 million views on YouTube to date. I personally never tire of watching it again.
 

  Susan Boyle told the Guardian regarding her autism diagnosis, "I was told I had brain damage. I always knew it was an unfair label. Now I have a clearer understanding of what's wrong and I feel relieved and a bit more relaxed about myself (The Guardian, December 7, 2013)."

In an interview with the International Business Times, Susan Boyle also said, "Asperger's doesn't define me. It's a condition that I have to live with and work through, but I feel more relaxed about myself. People will have a much greater understanding of who I am and why I do the things I do (International Business Times, December 8, 2013)."

The National Autistic Society considers Susan Boyle an example of the 'invisible generation' of adults with autism that went undiagnosed for years (BBCNews Scotland, December 9, 2013).

The following is a news story from CNN about Susan Boyle being diagnosed with autism. 
   

The Huffington Post: The Huffington Post spotlighted Susan Boyle in their December 12, 2013 article about influential individuals with autism called These 8 People Will Change the Way You Think About Autism and Asperger's.

 

Movies: Susan Boyle has appeared in the following films.

• In 2009 Susan Boyle starred as herself in a television special called,  I Dreamed a Dream: The Susan Boyle Story. You can watch the complete version of that show here.

• Susan Boyle: An Unlikely Superstar is a documentary about Susan Boyle which was produced in 2011 by Firecracker Films. You can watch the documentary on YouTube at this link.
• Susan Boyle recently made her acting debut (where she wasn't appearing as herself) in The Christmas Candle (2013).

Music Albums: Susan Boyle's music is very popular in both the United Kingdom and the United States and has sold 14 million albums worldwide (International Business Times, December 8, 2013). Susan Boyle has produced the following music albums.

• I Dreamed a Dream (2009)
• The Gift (2010)
• Someone to Watch Over Me (2011)
• Standing Ovation: The Greatest Songs from the Stage (2012)
• Home for Christmas (2013)

Her album I Dreamed a Dream became the fastest selling debut album in the United Kingdom. In addition, to these albums fans in the United Kingdom can hear Susan Boyle when she holds a tour of concerts.

Author: In 2010 Susan Boyle wrote the book The Woman I Was Born to Be: My Story.

Christian Faith: Several of the songs that Susan Boyle has given to the world on her popular albums are about the Christian faith. Susan Boyle credits her Christian faith for helping her cope with grief when she lost her beloved mother Bridget in 2007. She said, "That's what keeps you going. I have my faith, which is the backbone of who I am, really."(Christianity Today, November 17, 2009).

Website: To keep informed of the latest developments with Susan Boyle visit her website at www.susanboylemusic.com or you can interact with other fans at the Susan Boyle Fansite.

 

Wikipedia: You can find out more about Susan Boyle's life on the Susan Boyle Wikipedia Page.

Social Media: You can follow Susan Boyle on the following social media areas. 

• Facebook Page for Susan Boyle
• Twitter for Susan Boyle @SusanBoyleHQ

Special thanks to Susan Boyle for being an Autism Light. We expect to continue to hear amazing things from her as she shares her gift of music and represents adults with Asperger's through her example and growth.

The photo of Susan Boyle in this post is in the Wikipedia Commons.

Ethan

Autism Light #257 is Ethan.

 

Ethan is a 6 year old boy from Midland City, Alabama who has the form of autism called Asperger's syndrome. Midland City, Alabama is a small town of about 2,000 people, located in Dale County. Ethan was kidnapped off his school bus on January 29, 2013, and was held in an underground bunker until his safe rescue on February 4, 2013. Ethan is an Autism Light for his bravery during this ordeal and for how his plight helped raise awareness of autism in the media.

Autism Diagnosis: During the hostage standoff police said, Ethan "suffers from Asperger's syndrome and ADHD, and, so far, they have been delivering his medication through the 4-inch wide air pipe. (Source)."

Prayer Vigils:

• Wednesday, January 30, 2013 a prayer vigil was held for Ethan's safe return in the town square and involving several of the churches in Midland City, Alabama (Source).  
• Friday, February 1, 2013, the community where Ethan lives held a prayer vigil for his safe return (Source).

Ethan's Friends: Ethan's friends said that he is a "great kid. He is a lot of fun (Source)."

Other News: For more information on this story read a New York Times article called Small Town in Alabama Confronts Boy's Kidnapping.

Social Media: During the hostage standoff concerned people took to social media to express their hope for a resolution, including these sites.

• On Twitter the hashtag #RescueEthan was used. There is also a Twitter Account called @RescueEthan that has been created to support Ethan. Following Ethan's rescue people started using the hashtag #EthansHome.
• On Facebook the group called Prayers for Hostage Ethan in Midland City, Alabama was created. Note: This page is only for united prayer for Ethan. 

There have been many inspirational and kind tweets on Twitter for Ethan. Here are two from teenagers who live in Dale County, Alabama near the scene of the tragedy.

Get #RescueEthan trending! Everybody help. Tweet this to popular accounts, or anybody. FOR ETHAN!! 🙏😁
— Micayla Farris (@micayla_farris) January 30, 2013

I'm aware that getting #RescueEthan trending won't rescue him. But I want everyone aware! Prayer is necessary in all things. Especially now
— Courtney Breanne New (@courtneybnew) January 30, 2013

Special thanks to Ethan for his courage during this ordeal. Autism Light will update this post as more information becomes available.  We join Ethan's community and family in rejoicing in a happy resolution to this tragedy and that now Ethan is reunited with his family.


Autism Light honors diverse heroes to the world of autism.

The map of Dale County, Alabama is in the Wikipedia Commons and attributed to Arkyan.

James King

Autism Light #235 is James King.

 

James King is a military contractor from Orlando, Florida. He is married to Diane King and is the father of five children. James King is an Autism Light because on April 13, 2010, he rescued then 11 year old Nadia Bloom from a Florida swamp where she had been missing for four days.

Nadia Bloom has the high functioning form of autism known as Asperger's Syndrome.  She disappeared on April 9, 2010 and it would later be revealed that she had went on a hike by herself and got lost in an alligator infested swamp in Winter Springs, Florida. Search teams had been trying for days to find her. James King went out in the swam by himself on the morning of April 13, 2010 to search for her. When he found her James King used his cell phone to call 911 for help to get Nadia Bloom out of the swamp. Here is a news story on this rescue of a girl with autism done by the Today show in April, 2010.

Visit NBCNews.com for breaking news, world news, and news about the economy

 

James King proclaimed that God helped him find Nadia Bloom. Norris J. Chumley gave this account in the Huffington Post about how faith helped James King be an Autism Light.

Rescue teams searched for days on foot, by helicopter, and with search dogs, but James King, a volunteer and member of Nadia's church, began to pray while searching. On ABC's Good Morning America, King said, "I prayed and prayed, and God showed me the way. The hardest part of it was getting out of my own way; putting my own thoughts aside and listening to God." Appearing on NBC's Today Show, King confessed to Meredith Vieira that his wife, Diane King, gave him advice the night before joining the search, "James, when we lose something we pray in the spirit and we always find it.(Source)."

Tanya Bloom, Nadia's mother said, "'Thank you' is not appropriate for what James King did. We are so fortunate God used him to bring her back to us (Source)."

For more information on this rescue on April 13, 2010, see the following news stories

• Watch Press Conference with James King Full Video (Examiner)
• Church Member Finds Nadia Bloom in Dense Woods (WESH.com)
• James King Speaks About Nadia Bloom on Today Show
• Proven: 11 Year Old Nadia Bloom's Rescue is a Miracle

Special thanks to James King for being an Autism Light and helping find Nadia Bloom when she was missing in 2010. When hope was diminishing for Nadia, James King armed with his faith and courage went searching for her. We wish both James King and Nadia best wishes in the years ahead.

Autism Light honors diverse heroes to the world of autism.

 

Jacob Barnett

Autism Light #227 is Jacob Barnett.

Jacob Barnett is a 13 year old college student from Indianapolis, Indiana who has Asperger's. He is a child prodigy for his amazing talents in mathematics and physics. Dr. Joanne Ruthsatz, a Psychology Professor at Ohio State University, says that Jacob's talent is 1 in 10 million (Source: See 60 Minutes Segment on Jacob Barnett below). Jake Barnett is an Autism Light for demonstrating the exceptional achievements that some people with autism possess as he excels in the important fields of math and science. Only a small percentage of those with autism have the talents that Jake Barnett has, but he demonstrates the amazing potential in some people who are diagnosed with autism. 

Here is a 60 Minutes segment done on Jacob Barnett in January, 2012. 

In the 60 Minutes segment, Jacob was told that his parents say he is proud of his autism and Jacob responded by saying:

That [Autism] I believe is the reason why I am in college and I am so successful. It is the rise as to my love for math and science and astronomy. It is the reason why I care. Otherwise I wouldn't have gotten this far.

At age 10, Jacob Barnett was accepted into Indiana University – Purdue University Indianapolis (IUPUI).  His academic achievements are described in this way on his website:

Barnett is quickly running out of advanced math classes that he can actually take. He often tutors fellow students, normally graduate and post-graduate students. He is also developing an alternative theory to the Big Bang Theory, his hypothesis being that the Big Bang couldn’t have happened through advanced math. Barnett has a tested math IQ of 170, the highest that can be tested for. IUPUI is seeking to move him from a student to a paid researcher’s position (Source).

The following video is Jacob Barnett giving a talk called "Forget What You Learn" for TEDxTeen.

Jacob's mother, Kristine Barnett, started Jacob's Place in 2000. It is now an autism charity that helps 200 children with autism in Indiana. 

Social Media: You can follow Jacob Barnett on the following social media pages.

• Facebook
• Twitter @JacobBarnet
• YouTube @mathboysmom

Jacob Barnett is on pace to graduate from college next year at age 14 and then plans to go on for his PhD.  He was the youngest person ever to be published in Physical Review A, a physics journal. He is also working on writing a book to help reduce the phobia people have toward mathematics.

Special thanks to Jacob Barnett for being an Autism Light. We expect to continue to hear amazing things from this young man from Indiana as he makes the transition from student to contributing to society as a math and science expert.  

Autism Light honors diverse heroes to the world of autism.



Juan Mann and Christopher Webster

Autism Lights #196 are Juan Mann and Christopher Webster.

Juan Mann founded the Free Hugs Social Movement in 2004 in Australia. Since then the practice of offering free hugs to strangers has spread to other great cities of the world, including San Antonio, Texas, where a young man with Asperger's named Christopher Webster has been involved in the campaign for six years. Free Hugs founder Juan Mann and participant Christopher Webster are Autism Lights because of the way the Free Hugs Social Movement brightens peoples day, including having changed Christopher's life by helping him leave his comfort zone in social reactions.

Christopher Webster provides an average of 22 free hugs on a typical Saturday at his post across from the Alamo Plaza in San Antonio, Texas. He holds a sign that says, "FREE HUGS" and has the opportunity to meet dozens of new people. The practice is out of the comfort zone for most people with Asperger's and the experience has had a profound impact on Christopher Webster's life. Since beginning the free hugs, Christopher has had life improvements, such as the determination to start taking college computer system courses (Source).

Christopher Webster said regarding his experience in the Free Hugs Campaign, "It was stepping out of my comfort zone. Once it started, it became natural. I do it to make the world a better place. One hug at a time (Source)."

Here is the official video of the Free Hugs Campaign, featuring Juan Mann. It's a video that has received over 72 million views on YouTube.

For more information on Christopher Webster involvement in the Free Hugs Campaign read these online articles. You can also see photos of Christopher Webster at these links.

• Autistic Man Offers Free Hugs
• Autistic Man Offers Free Hugs, Improves His World
• Man Leaves Comfort Zone to Hug Strangers

Special thanks to Juan Mann and Christopher Webster for sharing free hugs and making the world a brighter place for people. Never underestimate the power of a hug, especially when it comes from someone with autism.


Autism Light honors diverse heroes to the world of autism.


Photo: The Photo in this post is in Wikipedia Commons and authorized for use by the author Miles Li.

David Myatt

Autism Light #185 is David Myatt.

David Myatt is from Leamington Spa, Warwickshire, United Kingdom. This is about 100 miles North West of London, 25 miles south of Birmingham and 10 miles east of Stratford upon Avon. David formed the Halo Driving School in Leamington Spa in November, 2011. David Myatt has Asperger's and one of the specialties of his business is teaching individuals with autism how to drive a motor vehicle. David Myatt is an Autism Light for being the visionary behind a program that can help people with autism gain greater independence through driving independently. 

Prior to starting his Halo Driving School (Leamington Spa), David Myatt worked as a Print Production Manager at Cranfield University. David describes the challenges he faced of being on the Autism Spectrum and learning to be a driving instructor this way:

The training was painful and near impossible for me at first, it wasn't until I was introduced to a trainer who is also on the spectrum that I really began to truly understand what was required of me as an instructor. I think this experience made me realise just how difficult a task learning to drive could be for some young people, and led me to specialise in teaching others on the spectrum. 

While neuro-typical individuals can benefit from the Halo Driving School also, there is a niche for autism under David Myatt's leadership.You can find information on Halo Driving School, enrollment, contact, and fees a their website at www.halodrivingschool.co.uk.

Because of the specialization in training people with autism Halo Driving School and David Myatt receive referrals from a variety of autism organizations, including the National Autistic Society, Warwickshire County Council Service Directory, and the support groups "Special People" and "Autism West Midlands" based in Birmingham.

David Myatt offers this advice for people with autism that are seeking to learn to drive.

Many driving instructors here in the UK use "one size fits all" training systems for their pupils, the only variable being the speed at which the training is delivered. Clearly this can cause problems for many pupils on the spectrum, who often require the transfer of the necessary skills presented in a way that they can easily relate to. Try to find an instructor who has specific experience of teaching pupils on the spectrum, and get feedback from those pupils if possible. Specialist training is easier to come by now for instructors, one course of training in particular is "Revolutions" developed by Julia Malkin MBE which aims to give instructors a good understanding of the issues people with autism face when learning to drive.

Social Media: You can follow Halo Driving School (Leamington Spa) on Facebook.

David Myatt finds his work at Halo Driving School to be very rewarding and satisfying. He described his experience this way:

I think the most rewarding part of my work comes from finding a tailored learning path that works for each individual pupil, developing their skills, and then seeing them progress towards becoming a safe, confident, independent driver. So much is said about the struggles and difficulties people on the spectrum face, so seeing them show what they CAN achieve, with the right help and support, never fails to give me a buzz.

Special thanks to David Myatt for helping individuals with autism learn to drive. Although we know that each individual must put forth their own effort to achieve this goal in their life, it is truly a blessing that people with autism can turn to someone who can relate to their struggles as they learn this skill.

Other Articles: For other online articles on David Myatt consult these news stories.

• Aspiring Drivers with Autism Taught By Lemington Man (BBC)
• Teaching Autism Sufferers To Drive (Lemington Observer)

Autism Light honors diverse heroes to the world of autism.


Photos: The photos in this post were used with permission of David Myatt.

Anita Lesko

Autism Light #183 is Anita Lesko.

Anita Lesko is from Pensacola, Florida. Anita was diagnosed with Aspergers at age 50, and lived the first five decades of her life without knowing about how Aspergers impacted her relationships and life. Autism though has not held Anita back from working to help others. She is an anesthesiologist, author, speaker, trainer, and one of a group of leaders seeking to establish a mentor program for people with Aspergers.  Anita Lesko is an Autism Light for the important role she has filled in bringing awareness of autism through her writing and working to establish a program for mentors for people with Aspergers.

Anita Lesko is working with Dr. Tony Atwood and Craig Evans on a Aspie Mentor series. Craig Evans was Autism Light #178 and you can learn more about him at his entry on Autism Light. The first book is Been There. Done That. Try This!  In the video below Anita announces her book and also asks for the help of anyone with Aspergers to take her survey so the results can be used to determine the most relevant content for the series and give insight for the mentor program going forward.  The survey can be taken at her official website at www.bornwithaspergers.com.


Anita Lesko announces "Been There. Done That. Try This!" The first book in the Aspie Mentor series.
In addition to her key role in the new Aspie Mentor series, Anita Lesko is also the author of Asperger's Syndrome: When Life Hands You Lemons, Make Lemonade, which was published in August, 2011. In November, 2011 Anita directed the DVD Born with Asperger's.  In the book she writes:

Asperger's syndrome is poorly understood by most people. In fact, many people in the medical and mental health fields truly do not comprehend the magnitude of the challenges that people with Asperger's face much less how to help them.

More information on her book is available on her website. Anita also appears in Chapter 7 of Dr. Temple Grandin's new book Different...Not Less.  Dr. Temple Grandin was Autism Light #38 and has her own feature at Autism Light that readers may enjoy checking out.

Anita Lesko was interviewed by Craig Evans at Autism Hangout and here is the video of that conversation that was released in December, 2011.

Asperger's Support Group: In 2011, Anita Lesko started an Asperger's Support Group in her community. She has 25 consistent members who range in age from 10 to 65 years old. Parents are also sometimes involved in the group alongside their children. Anita Lesko writes this about her experience:

I have been conducting my group with positive thinking and have really made a difference in so many of their lives. It makes me very happy, and it makes me want to do more, on a global scale, to help them live their best life possible.

Speaker: Anita Lesko enjoys speaking to others about Asperger's. She had the opportunity to speak at the Inclusion conference in March at the University of West Florida.

Profession: Anita Lesko received her Master of Science in Anesthesia from Columbia University in 1988. She passed her board certification for Nurse Anesthetists on her first attempt in December, 1988. She has worked full-time as an anesthesiologist for 24 years. In her role as an anesthesiologist she is assigned patients with ASD. Because of her experience as someone with Aspergers she is well suited to give special care for patients with ASD going through medical procedures. She dims the lights in the pre-op area, operating room, and recovery room. She also tells her coworkers in the hosptial to minimize touch, movement, and noise. Anita Lesk told Autism Light, "This is a very rewarding experience, because I immediately tell the patient and family in pre-op that I have Asperger's, and I've actually had mom's burst out crying and throw their arms around me that I'm going to be taking care of their beloved child with autism."


Special Interests: Anita is also a photographer. Inspired by the movie TOP GUN, she served as a military aviation photojournalist from 1995-2002 and had her work internationally published. During this time she got to fly in an F-15 fighter jet, a Navy training helicopter, and spend a lot of time with the U.S. Navy Blue Angels.

Future Plans: Anita told Autism Light, "I have now put my laser-focus on helping others with Asperger's Syndrome. Working together with Dr. Tony Attwood and Craig Evans, we are going to create the biggest Asperger Mentor system on the planet."  If you would like to contact Anita Lesko with any questions on her Aspie Mentor series, the related survey, or any other issue, she invites you to contact her at the email of anita@bornwithaspergers.com.

Special thanks to Anita Lesko for being an advocate for the needs of people with Asperger's Syndrome. The autism community benefits from having her efforts as an Autism Light.

Autism Light honors diverse heroes to the world of autism.

This post went into syndication on Autisable.

Photo: The photo in this post is used with permission of Anita Lesko.

Michael John Carley

Autism Light #173 is Michael John Carley.

Michael John Carley is from Brooklyn, New York. In late 2000 he and his then 4 year old son were diagnosed with Asperger's Syndrome a week apart from each other. Michael John Carley was 36 at the time of his diagnosis. As a result of this diagnosis he founded the Global and Regional Asperger's Syndrome Partnership (GRASP) and serves as it's Executive Director. He also serves as the Executive Director of ASTEP, which focuses on employment issues. Michael John Carley is a CEO, author, speaker, autism advocate, and is often performing the challenging role of mediating autism politics for his constituents who have autism.  Michael John Carley is an Autism Light for the passion, intellect, leadership, and the needed voice he provides for those who have autism. 

DSM-5: The proposed changes in the 5th edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) that would eliminate the reference of Asperger's Syndrome and instead label all individuals as having autism, if they qualify under more stringent standards, has certainly drawn the attention of many in the autism community. Today's Autism Light is one of the voices encouraging the DSM-5 committee not to narrow the criteria for the diagnosis of autism. He has written an online petition which people can sign in support. The petition is at this link.  Publication of the new DSM-5 is scheduled for Spring, 2013. Michael John Carley writes this about the situation related to changes in the DSM-5.

We do seem to be at the lead for the moment in attempting to convince the Committee to discard the proposed changes, but eventually we believe that parents organizations will have to do more than issue a one-page statement of concern. GRASP members have lots to lose by these changes, but parents and their children have more to lose (Michael John Carley).

You can follow updates on the DSM-5 on the GRASP Facebook page. Geri Dawson, the Chief Science Officer at Autism Speaks, has also issued an update on the DSM-5 situation and it can be found at this page on the Autism Speaks' Website.

Education: Michael John Carley received his B.A. from Hampshire College in 1986 and his M.F.A. from Columbia University in 1989. 

Speaker: Michael John Carley has spoken on autism related issues in a variety of settings. The following is a video on Michael John Carley's presentation that he gave in April, 2011 at Columbia University on the comedy and tragedy of autism politics. It is a primer on an array of issues related to how the autism puzzle has been tackled in different ways by well meaning lights to autism. Michael John Carley gives his presentation with an eye on the present challenges and dynamics as well as a mind on autism history.

Michael John Carley told Autism Light this about how his political views relate to a respect for alternative views:

I believe in engaging in politics, as I strongly believe in confrontation itself. However, "how" we confront is usually where we get things all wrong. When we demonize our ideological opposites, or deny them the same humanity we think that we posses...when we hate or give in to anger then we have lost the debate already, no matter how sound our beliefs are. (Michael John Carley). 

GRASP: GRASP was founded in 2003 by Michael John Carley and he serves as its Executive Director. GRASP stands for Global and Regional Asperger's Syndrome Partnership.  GRASP is the largest membership organization in the world for adults who themselves are diagnosed anywhere along the Autism Spectrum. According to their website, "GRASP's mission is to improve the lives of adults and teens on the autism spectrum through community outreach, peer supports, education, and advocacy." You can find out more about this member organization at their website at www.grasp.org.

ASTEP: Michael John Carley is also the Executive Director of ASTEP.  ASTEP stands for Asperger Syndrome Training & Employment Partnership. According to their website, "ASTEP's goal is to bring together employers and vocational support professionals to create a successful workplace environment for individuals with Asperger Syndrome and high functioning autism (AS/HFA). You can find out more about this organization at www.asperger-employment.org.

Other Work: As if the above roles weren't keeping him busy enough, Michael John Carley told Autism Light that he also has "a private contract with the New York City Public Schools, conducting teacher and parent trainings in addition to working with the district's spectrum kids."

Author: Michael John Carley is the author of two autism related books, the later which will be published soon.

• Asperger's From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome (2008). 
• The Last Memoir of Asperger's Syndrome (Recently Finished)

Media Appearances: According to the GRASP website, Michael John Carley has been represented in  the media outlets such as the New York Times, Washington Post, London Times, Chronicle of Philanthropy, Chronicle of Higher Education, ABCNews, BBC News, and Psychology Today. Autism related publications have also published his works. His articles have been published in magazines such as Autism Spectrum News, Autism Spectrum Quarterly, TAP (The Autism Perspective), and Autism/Asperger Digest.

Social Media: You can follow the work of Michael John Carley and GRASP on the following social media areas:

• Facebook  

• Twitter @Grasp_Org

• Twitter @mjcarley  

• YouTube Channel

Special thanks to Michael John Carley for his dedication to make a difference for those who have autism. We wish him and all his members on the autism spectrum continued success in all their efforts to shine a light on the needs and dreams of those with autism. For more information on Michael John Carley visit his biography on the GRASP website.

Autism Light honors diverse heroes to the world of autism.

Photo: The photo in this post is used with permission of Michael John Carley.