Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Friday, May 10, 2019

Brian Schnelle

Autism Light #470 is Brian Schnelle.



Brian Schnelle is a 31 year old man from the Old Hickory area of Nashville, Tennessee, who has autism. Brian spent 12 years as a student at Trevecca Nazarene University, and in May 2019 graduated with honors with a bachelor's degree in sports management. Brian Schnelle is an Autism Light because his perseverance in college serves as an inspiration to other autism families.

Annual Award Established at Trevecca: "Brian's perseverance inspired the administrators and teachers in the Department of Exercise and Sports Science to establish an annual award in his honor. Brian was the first recipient of the Brian Schnelle Perseverance Award (Tennessean, Jessica Bliss, May 10, 2019)."

The following is a video about Brian Schnelle's experience in college and his graduation. 


Parents:
Brian's parents Jeff and Jane Schnelle were his foster parents when he was 1, and formally adopted him when he was 3. At age 7 he was diagnosed with autism. Despite needing the ongoing care of his parents to this day in many elements of his life, Brian loves to study. Jeff Schnelle attended almost every day of college with his son, because Brian lived at home and couldn't drive himself to school. Brian's dad would sit in the back of the classes he was taking.

Jeff Schnelle said this word of encouragement for autism parents. "There's a lot of people who are struggling with a loved one on the spectrum, and they're not sure what's going to happen next or how they are going to cope. You do learn to live day-by-day, you don't look too far into the future...There are days when you are not sure you're going to get through it. When you're not seeing the progress you want to see. But then you look back and you think, 'Wow, this is remarkable. he's done so much (As quoted by Jessica Bliss, Trevecca student with autism graduates after 12 years, Tennessean, May 10, 2019)."
Brian received support in college at Trevecca's Center for Leadership, Service and Calling, where he independently took all his tests in a comfortable environment. His accommodations included giving a few weeks advance notice on the due date of papers from his professors so that he could write a small amount each day toward the paper. While he received supports, Brian had to do all his own work toward his degree, which meant to be successful he had to work at it for 12 years and concentrate on completing a few classes each year toward his program.

For more information on Brian Schnelle please see the following articles:
Special thanks to Brian Schnelle for being an Autism Light. His experience in college inspires other students with autism. We wish Brian Schnelle all the best in the next chapter of his life and hope he inspires other young people to go to college, even if it takes more than the traditional 4 years to complete their goal. 

Autism Light honors diverse heroes to the world of autism.

Sunday, April 28, 2019

Xena Hickey

Autism Light #469 is Xena Hickey, The Warrior Puppy.



Xena the Warrior Puppy is a Pitbull dog who lives in Johns Creek, Georgia. Xena was a severely abused rescue dog adopted from the Dekalb Animal Services, who over the past 6 years has been a therapy dog for a now 14 year old boy with autism named Jonny Hickey. Xena is an Autism Light for having a positive impact in improving Jonny's journey with autism. Xena won the American Society for the Prevention of Cruelty to Animals (ASPCA) Dog of the Year Award in 2013. Xena and Jonny have their own 501c3 non-profit and over the past six years have been raising awareness for autism and the prevention of animal cruelty.

The following video tells the story of Xena and Jonny Hickey and was featured when Xena won the prestigious ASPCA Dog of the Year Award in 2013.




Xena arrived at the Dekalb Animal Services on September 25, 2012 and after months of physical rehabilitation was able to join Jonny's family on February 11, 2013, and officially adopted on March 25, 2013. Linda Hickey stated, "We've spent thousands of dollars on therapy, and I just said to myself that is the best therapy, standing, four-legs, in my family room (As quoted by Pawpulous.com, June 14, 2017)."

This video was made by Jonny to promote April as Autism Awareness Month and the prevention of Animal Cruelty Month.



Although this story was born six years ago, it is remarkable the difference Xena continues to make in Jonny's life and for others as they raise awareness of autism and animal cruelty. There next publicized event is a "Spread the Words" 5K Fun Run/Walk on October 29, 2019, to benefit the Special Needs Community and Animal Rescue.

If you wish to keep tabs on Xena visit her website at Xena the Warrior Puppy and check out her social media pages below. 

Xena will be added to the Autism Light Animal Page today. Xena is an inspiring example of a rescue dog who is making a difference in the life and development of a young person with autism. We wish Jonny and Xena all the best in the future.

Autism Light honors diverse heroes to the world of autism.

Sunday, November 25, 2018

Tristram Smith

Autism Light #468 is Tristram Smith.



Tristram H. Smith, Ph.D., BCBA, was a leader in the field of evidence-based research as a treatment for autism. He had been serving at the University of Rochester Medical Center (URMC) since 2000 and at the time of his passing was the URMC's Haggerty-Friedman Professor in Developmental/Behavioral Pediatric Research. He was born on April 9, 1961, and passed away on August 8, 2018, at the age of 57, from a heart attack. He is survived by his wife Jennifer Katz and two children, Jonah Smith and Madeleine Katz. His funeral service was held on August 10, 2018, at the Anthony Funeral Chapel in Brighton, New York (Read more at Anthony Funeral Chapel Obituary for Tristram Smith). Tristram Smith will be placed on the Autism Light Memorial Roll today.


Alison Singer, president of the Autism Science Foundation, said of Tristram Smith, "For autism families, he was a hero. His research was groundbreaking, of course, but he also pushed for increased access to autism services and lobbied for legislative changes. It's unusual to see scientists also act as advocates, but Tris went far beyond what most clinician-researchers do (As quoted by University of Rochester Medical Center News, August 8, 2018).

Other Tributes: The Association for Science in Autism Treatment published several noteworthy tributes to Tristram Smith after his untimely death. You can read them in the article Tributes to Dr. Tristram Smith.

In April 2018, the Autism Partnership Foundation gave Tristram Smith the Lifetime Achievement Award. Here is the video of the presentation of the award.




Author: Tristram Smith published the book Making Inclusion Work for Students with Autism Spectrum Disorders: An Evidence-Based Guide in 2011. It is available on Amazon.com.

Tristram Smith passed away just days after giving this presentation at the UC Davis Mind Institute on August 3, 2018.



We remember Tristram Smith for his efforts to advance the field of evidence-based research for autism treatment. It is our hope that his life and research will be a foundation to inspire others to enter the field of autism research to continue the advancements for future generations. Our thoughts are with the family he leaves behind.

Autism Light honors diverse heroes to the world of autism.

Monday, March 12, 2018

Mike Iaconelli

Autism Light #459 is Mike Iaconelli.



Mike Iaconelli is a professional bass fisherman (BASS Elite Series angler), television personality, and podcast show host from Pittsgrove Township, New Jersey. He was born on June 17, 1972. He and his wife Becky have four children. Mike Iaconelli, whose nickname is Ike, is an Autism Light because of his concern to raise awareness for autism. He becomes the first professional fisherman to appear on Autism Light. His name will be placed today on the Autism Light Sports Page, along with other athletes that have been recognized through the years.

In November 2009, Mike Iaconelli cut off his famous beard and he sold it on eBay with the proceeds going to the New England Center for Children, a school for autism in Southborough, Massachusetts. See Ike Auctions Off His Lucky Beard on eBay for Autism Charity for more information on this charitable news.

The following is a YouTube video where Mike Iaconelli explains about his lucky beard helping an auction charity.


Fishin' with a Mission: The auction Mike Iaconelli did to benefit autism was utilized to further the efforts of the Fishin' with a Mission decal program that is led by Eli Delany. More information on this autism awareness initiative of Fishin' with a Mission is at www.mylittlebuddysboat.com.

Television Show: In 2017, Mike Iaconelli started the Going Ike television series on the Pursuit Channel.

Wikipedia: Visit the Michael Iaconelli Wikipedia Page for more information on this Autism Light.

Social Media: For more information on Michael Iaconelli, follow him at these social media channels.
Special thanks to Michael Iaconelli for helping the New England Center for Children and for raising awareness for autism. Hopefully this action will encourage other celebrities to help relieve some of the financial needs that autism agencies have.

Autism Light honors diverse heroes to the world of autism.

Saturday, June 17, 2017

Ebay

Autism Light #457 is eBay.




eBay (NYSE: EBAY) is a multinational ecommerce corporation with headquarters in San Jose, California. eBay was founded in 1995 by Pierre Omidyar and is currently a multi-billion dollar corporation with operations in 30 countries. Products on eBay range from basic supplies to eccentric and unusual items. eBay is an Autism Light for the special effort it made to make a memorable moment for a boy with autism named Sammy in 2016.

The following is a YouTube video produced with the efforts of Sammy's mother and the eBay social media team. It was uploaded on December 12, 2016. The following video describes Sammy's love for eBay and their logo and how happy he was to receive some promotional items in the mail from eBay.


Autism Parents Earn Money for Expenses on eBay:  Without a doubt eBay has helped some autism parents earn extra money for the challenging expenses of autism by providing a platform where individuals can make a profit by selling their goods to others.

Autism Parents Can Purchase Resources on eBay: eBay has a special section on their commerce website called Special Needs and Autism Educational Toys. Parents can go directly there to review and purchase resources for the education and growth of their children with autism.

eBay for Charity: eBay has programs in place that allow sellers on their site to support autism. For example, their eBay for Charity program allows sellers to support autism charities by donating 10%-100% of the final selling price of their products to a designated charity (See News Story on the Autism Plus Website). The video below explains how eBay for Charity works.



Wikipedia Page: You can read more about eBay on their Wikipedia Page.

Social Media: You can follow eBay on the following social media areas.

Special thanks to eBay for being a business that cares about people with autism and autism charities. We hope that they will continue to be an autism friendly business and add a smile to the lives of families with autism.

Autism Light honors diverse heroes to the world of autism.


Note: Autism Light is a neutral blog and we have no relationship to the business featured in this post nor have we received any return of goods or services for writing this post.

Saturday, January 28, 2017

Daniel Olmsted

Autism Light #455 is Daniel Olmsted.



Daniel "Dan" Olmsted was a journalist and former senior editor for United Press International (UPI). He was the owner and editor of the Age of Autism website. Dan Olmsted was born on June 17, 1952, and passed away in Falls Church, Virginia on January 23, 2017, at the age of 64. Dan Olmsted will be placed on the Autism Light Memorial Roll today. Dan Olmsted is an Autism Light for his influence and dedication to be a journalistic voice for those that believe autism has its root in environmental causes.

A celebration of life service will be held for Daniel Olmsted at the Fairfax Memorial Funeral Home on March 18, 2017, at 2pm. In lieu of flowers donations in Dan Olmsted's memory can be made to Age of Autism.

Obituaries and news about Daniel Olmsted may be viewed in the following articles.
The following is an interview Dan Olmsted had with C-Span on June 18, 2007 about autism.



Age of Autism: The Age of Autism website was started by Dan Olmsted in November 2007, and it's content has received millions of views in the 20 years of its operation. The Age of Autism website states that it is the "Daily Web Newspaper of the Autism Epidemic", and describes their mission in this way: "We are published to give a voice to those who believe autism is an environmentally induced illness, that is treatable, and that children can recover (Age of Autism Welcome from Dan Olmsted)." Following Dan Olmsted's passing, the work and content of Age of Autism continues to be published by other journalists like Mark Blaxill, John Stone, and Kim Stagliano, who was Autism Light #396.

Wikipedia: You can read more information about Dan Olmsted on his Wikipedia page.

The autism community mourns the loss of Dan Olmsted. His investigative journalism into a relationship between vaccines and environmental hazards to autism has provided important information that was not widely available in the mainstream media. He gave a voice to those who believe in an environmental cause of autism. It is hoped that his memory will encourage others to become journalists and that the work of Age of Autism will carry on with success.

Autism Light honors diverse heroes to the world of autism.

Note: Autism Light does not take a position on a vaccine-autism connection. We respect diverse views and recognize autism heroes on both sides of the issues who are a valuable voice to parts of the autism community. Our desire is to present the life stories of diverse people who are dedicated to helping those with autism in different ways and in doing so to allow their passions to be represented on the blog and to speak for themselves.

Friday, January 6, 2017

William Christopher

Autism Light #454 is William Christopher.




William Christopher was an actor who had a variety of roles in his career, but none as endearing as the role of "Father Mulcahy" in the hit 1970's era television show MASH. William Christopher was born on October 20, 1932, and died on December 31, 2016, from cancer. He is survived by his wife Barbara and two sons, Ned and John. His son Ned Christopher has autism. William Christopher is an Autism Light because of how his devotion to his son and his journey as an autism father has increased autism awareness. William Christopher will be placed on the Autism Light Memorial Roll today.

Education: William Christopher earned a Bachelor's degree in drama at Wesleyan University in Connecticut.

Actor: William Christopher starred as "Father Mulcahy" in the popular sitcom MASH and the spin off After MASH, from 1972-1983.  He also had recurring roles in television shows, "Gomer Pyle", "That Girl", and "Hogan's Heroes". You can read more about William Christopher's career at William Christopher's IMDb Page or the Wikipedia Page of William Christopher.

Here is a public service announcement that William Christopher appeared in for the Health Care Chaplaincy Network.



Mixed Blessings: William and Barbara Christopher published the book Mixed Blessings in 1989. The book tells their story of raising their son Ned, who has autism, and the hope and challenges they faced in making important decisions in his development.

National Autistic Society: William Christopher appeared in public service announcements for the National Autistic Society as a way of advocating for his son and others who have autism.

Obituary: You can read William Christopher's obituary at Legacy.com. CBS News also published a news article on William Christopher's passing.

Special thanks to William Christopher for being a light for autism. Although the general public will remember his well performed character acting roles, the autism community thanks him for fulfilling a role as a dedicated autism father, author, and an advocate. May his memory encourage others and remind us all of the way in which autism touches so many families, including those of famous celebrities.

Autism Light honors diverse heroes to the world of autism.

Thursday, December 22, 2016

Kaylee Rodgers

Autism Light #453 is Kaylee Rodgers.




Kaylee Rodgers is a 10 year old girl with autism ADHD from Donaghadee in Northern Ireland. Kaylee Rodgers is an Autism Light because of her angelic singing of the Leonard Cohen classic, Hallelujah, in her school's choir concert in December 2016.

Kaylee Rodgers is a student at the Killard House School, a school with 200 students who have special speech needs, including those on the autism spectrum. Kaylee's mother Tracy Rodgers said, "She always loved singing, but it wasn't until she started at Killard House School that she really came into her own. [Mr. Scates is] like her safety blanket -- he's amazing (Deseret News, Herb Scribner, December 22, 2016)."

Below is the video that Nichola Martin shared on Facebook on December 18, 2016, of Kaylee Rodgers singing Hallelujah at the Killard House School program. It was posted because Kaylee was sick and could not sing in a subsequent performance scheduled with her church's Christmas choir.



The video of Kaylee Rodgers' singing has received almost 3 million views in a week. Kaylee reflected on her joy in singing the song Hallelujah and said, "It was really amazing how many views I got...I just loved doing it (ABC7 Chicago, December 22, 2016)."

If you wish to assist Kaylee with developing her talent, a GoFundMe page has been started for her. We look forward to hearing amazing things about Kaylee in the years to come.

Special thanks to Kaylee Rodgers for being a Autism Light and sharing with world her musical gift. She is an inspiration to others with autism and a blessing to all those who have heard her sing.

Autism Light honors diverse heroes to the world of autism.

Monday, November 21, 2016

Eric Schopler

Autism Light #452 is Eric Schopler.



Eric Schopler was an American psychologist whose research into autism treatment led to his creation of what is known as the TEACCH autism program. Eric Schopler was born on February 8, 1927, in Furth, Germany. His family was Jewish and in 1938 left Germany for the United States. Eric Schopler passed away from cancer on July 7, 2006, at his home in Mebane, North Carolina, at the age of 79. He will be placed on the Autism Light Memorial Roll today.

The following is a tribute to Eric Schopler that was produced in 2005, a year before his death. 



TEACCH Program: The TEACCH autism program was developed from a pilot program that Eric Schopler and Robert Reichler started at the University of North Carolina in the 1960's. TEACCH was formed as a statewide program in 1972 by the North Carolina legislator (TEACCH Autism progam, Autism Speaks website). It went on to become a model for other autism programs around the world and is still being practiced widely to this day.

Tribute to Eric Schopler: Dr. Gary Mesibov, a previous director of TEACCH said, "Dr. Schopler's work erased the burden of unjustified guilt borne by many families and led to meaningful, productive lives for people with autism. For more than 35 years, the treatment that he developed has been the most widely used approach to autism in the world (Carolina Alumni Review, July 12, 2006)."

Journal of Autism and Developmental Disorders: Eric Schopler was editor for the Journal of Autism and Developmental Disorders from 1974-1997. He also wrote over 200 articles and books during his lifetime.

Board Member: Eric Schopler was a member of the following boards as he lived out his passion for autism.



Wikipedia: For more information about Eric Schopler read his Wikipedia Page. 

In Memorium: More information can be found about Dr. Eric Schopler in the obituary that the University of North Carolina published on their website. There is also a blog created in memory of Eric Schopler.

Special thanks to Eric Schopler for his contribution to the field of autism therapy. His legacy lives on in the many practitioners who went on to embrace his technique of collaborating with parents and to this day persistently utilize the TEACCH program. May Dr. Schopler's life inspire others to enter the field of autism therapy.

Autism Light honors diverse heroes to the world of autism.

Monday, July 25, 2016

Matthew and Courtney Oakes

Autism Lights #451 are Matthew and Courtney Oakes. 


Matthew (Matt) and Courtney Oakes are the parents of two children: Molly and Liam. Their 6 year old son Liam has autism. Matthew and Courtney Oakes are Autism Lights for their efforts to raise awareness of autism family life as parents, bloggers, and members of their community. Their blog is called 808 [the adventures].

Matthew Oakes: Matthew Oakes is an associate professor at Rock Valley College in Rockford, Illinois. In 2015, Matthew Oakes earned his Doctor of Philosophy (PhD) in Rhetoric and Composition from the University of Illinois at Chicago (Source: Matt Oakes' LinkedIn Page).

Courtney Oakes: Courtney Oakes serves as the Parents Talk Autism Manager for Easter Seals of Metropolitan Chicago and is a Medical Advocate for Rockford Sexual Assault Counseling, Inc. (Source: Courtney Oakes' LinkedIn Page).

The following is a recent Twitter message from Courtney Oakes introducing an inspiring blog post.




The Fatherhood Project: The following video highlights Matt Oakes and his life as an autism father and was produced in 2014 as part of The Fatherhood Project. The Fatherhood Project was produced by Corbyn Tyson and was part of the SoulPancacke Youtube series about what it means to be a father.



Bloggers: Matthew and Courtney Oakes have a Word Press blog called 808 [the adventures]. Matthew Oakes wrote a guest blog for Autism Speaks called 5 Things Every Autism Dad Should Know.

Social Media: You can follow Matt and Courtney Oakes at the following social media areas.
Special thanks to Matthew (Matt) and Courtney Oakes for being Autism Lights both in their vocations in Rockford, Illinois and to the larger autism community, as they tell their story as autism parents in a blog and video. The autism community, and especially autism parents, are encouraged as the Oakes' family shine their light for autism.

Autism Light honors diverse heroes to the world of autism.

Sunday, April 3, 2016

Jennifer Waltrip

Autism Light #449 is Jennifer Waltrip.



Jennifer "Jennie" Waltrip served for 17 years as a bright light in the special education field for Frederick (Maryland) County Public Schools and was a Family Trainer for the Maryland Autism Waiver Program. Jennifer Waltrip was born on July 20, 1969 and passed away from a brain aneurysm on January 20, 2016, at the age of 46. Jennifer is survived by her husband Bryan Christopher Waltrip and 9 year old twin children: Finn Larson and Isabel Bear. Her obituary is listed at Legacy.com. Jennifer Waltrip will be placed on the Autism Light Memorial Roll today.

Education: Jennifer Waltrip received the following education.

Teaching Career: Jennifer Waltrip's teaching career included the following.
  • Frederick County Public Schools, Teacher Specialist, Secondary Specialized Programs
  • Caroll Manor Elementary, Challenges Program
  • Ivymount School

In addition, she served as a Family Trainer for the Maryland Autism Waiver. The Maryland Autism Waiver is a program of the Maryland State Department of Education that provides intensive services both in home and school for eligible children with autism regardless of family income.

For more information on Jennifer Waltrip read these online articles.


The autism community was blessed to have a dedicated special education teacher Jennifer Waltrip in Frederick, Maryland and her absence will be felt. It is hoped that her example will inspire others to enter a career in special education teaching.

Autism Light honors diverse heroes to the world of autism.

Saturday, April 2, 2016

Marion Bruce

Autism Light #448 is Marion Bruce.




Marion Bruce was a pioneer in bringing autism awareness to New Zealand and improving the situations of autism families and their loved ones by effectively starting the organization presently called Autism New Zealand. Her youngest son Andrew has autism. Marion Bruce was born on June 26, 1925 in Christchurch, New Zealand, and passed away on February 25, 2016 in Wellington, New Zealand, at the age of 90.   Marion was predeceased by her husband Dr. Lyell Bruce. She is survived by her children: Evan, Alison, Mary, and Andrew.  Her obituary is listed at the New Zealand Herald. Marion Bruce holds the distinction of being the first person from New Zealand to be featured at Autism Light. She will be placed on the Autism Light Memorial Roll today.

Autism Mother: When Marion Bruce was placed in the role of being an Autism Mother, there was little known about autism in New Zealand. It was written of her that, "Marion Bruce spent her life trying to make a better world for her autistic son. In doing so, she helped scores of other autistic children and their families (Access, Hillary Stace, March 31, 2016)."

Autism New Zealand: Marion Bruce was effectively the founder of what is now Autism New Zealand, an organization she was a lifelong member of. It was her passionate efforts that helped convince the Intellectually Handicapped Children's Association in New Zealand to recognize autism in New Zealand and set up an autism sub-committee in 1969. This group later became the Autistic Association and then became what it is today known as Autism New Zealand. Visit the Autism New Zealand Website to learn more about their ongoing work.

Tribute from Phillipa Barker: Philippa Barker is the former national secretary of Autism New Zealand. He wrote these words about Marion Bruce's important contribution to autism in New Zealand.
She was the go-to person for information and advice on autism in New Zealand when no-one knew anything about it, when there were no resources or facilities. In the UK there were schools for autistic children but not here.
She lobbied for facilities and to have autism recognised as a condition. She travelled abroad to conferences, often at her own expense, to learn about the condition and brought back information to parents here (As quoted in Access, Hillary Stace, March 31, 2016).  
Conversation with Autism Pioneer: Marion Bruce is mentioned in Adam Feinstein's important work called A History of Autism: Conversations with the Pioneers. Adam Feinstein was Autism Light #347.

Education: Marion Bruce earned her BA in languages from the University of New Zealand in 1947.

Queen's Service Order:  Marion Bruce was awarded the prestigious Queen's Service Order in 1986 for services to the community.  Her volunteer efforts included serving as an advisor to Mana Parents Centre.

For more information on Marion Bruce read the tribute article to her in Access on March 31, 2016 by Hillary Stace. This profile at Autism Light is indebted to their understanding of Marion Bruce's life and background.

Special thanks to Marion Bruce for her leadership to shine a light for autism in New Zealand. The autism community is grateful for her life and work. May the memory of her passion for autism inspire others to give of themselves to make a difference for those who need a voice.

Autism Light honors diverse heroes to the world of autism.

Thursday, March 31, 2016

Benji the Labrador

Autism Light #447 is Benji the Labrador.


Benji is a Labrador dog who lives in Aberdeen, Scotland in the United Kingdom. Benji is a therapy dog for a 7 year old boy with autism named Declan McInnes-Pirie. Benji is an Autism Light for the positive impact he has on Declan's life as he stays by his side as a faithful dog.

Declan's mother Phionna was encouraged to try a dog for her son after she read the book A Friend Like Henry written by Nualah Gardner, who was Autism Light #58.  Henry is another dog who from Scotland who made a difference for a child with autism.

Phionna McInnes-Pirie says this about the light Benji has shined in her son Declan's life.
Benji has been wonderful, he has really had his personality tested with Declan and he has risen to the challenge every time. Never have I seen such loyalty, patience and compassion. 
There has been many a happy tear shed in this house. You read about it, sure, but until you see it happen with your own child - well that's some experience.
It's worth everything we put ourselves through. Getting Benji was the best thing we could have done (STVNews, Victoria Pease, Boy's Best Friend: Autistic 7 year-olds bond with Labrador Benji, March 19, 2016).
Two specific areas where Benji has helped Declan with his some of the effects of his autism are preventing him from running away and providing pressure therapy. A harness and handle keeps Benji and Declan together in public and offers a barrier to his wandering. Benji is able to provide pressure therapy by placing his dog paw or leg on Declan, which helps decrease his anxiety.

Benji is in the process of being trained by Assistance Dogs International (ADI) and when completed he will be able to go more places with Declan and become an official autism therapy dog. For more information about Benji the Labrador read the article on STVNews by Victoria Pease (Boy's Best Friend: Autistic 7 year-olds bond with Labrador Benji, March 19, 2016)

Benji will be added to the Autism Light Animal Page today. Benji is a fine example of a dog who is making a difference through his therapeutic and loving relationship with a young person with autism. We wish Benji and Declan the best in the future.

Autism Light honors diverse heroes to the world of autism.

Tuesday, March 29, 2016

David Kot

Autism Light #446 is David Kot.


David Kot is a comic book script writer who founded Face Value Comics, a non-profit which raises autism awareness and featured the world's first comic book hero with autism. David lives in York, Pennsylvania with his wife Angie and four children. In addition to his own clinical diagnosis as an adult with Asperger's, his young step-daughter also has autism. David Kot is an Autism Light for his influential efforts to raise autism awareness through his comic book enterprise and as a self-advocate.

The following is a video where David Kot explains how Face Value Comics is intentional about raising autism awareness.



Face Value Comics: David Kot and Angela Kot created Face Value Comics, which was legally incorporated as a non-profit organization in 2011 and is presently a 501 (c) 3 non-profit organization. According to their website, "Autism at Face Value practises 'comic awareness' and employs the use of comic books and educational toys to publicly demystify Autism Spectrum Disorders (Autism at Face Value - About Us)."

Some of the accomplishments of Face Value Comics include:
  • Introducing the character "Michael" who is the first comic book super hero with autism.
  • Having a third party medical journal review their work for their therapeutic value to children.
  • Advising the Dover Area School District on new special needs curriculum based on our use of facial feature recognition helps us maintain our non-profit status.
David Kot says,
"Comic book author and pop-icon Stan Lee wrote Spiderman when he was 40 years old. I debuted Face Value Comics #1 a year earlier than my role-model. Since this time, we have been on the nation’s largest news network, reviewed in a medical journal, and outsold some popular titles. Our comic has been nominated and won two international awards for Children’s Literature (Ireland, Canada) and enshrined in the National History of Disability History in New York. We have international print and distribution for our comics. Additionally, we hold the copyright on our work, and are proud to give kids heroes like themselves. In the future, we have many great plans."
His plans for Face Value Comics in the future include:
  • Developing public school special needs curriculum with the Dover Area School District for a net surplus, insulated against legislative budget cuts, and without levying a single dime to the typical taxpayer;
  • Sensory-friendly action figures of our heroes, with flexible pieces (i.e. silk cape or wool cape), designed to calm children who play while they play;
  • Printing comic books with 3D features, like raised facial expressions to literally feel emotions, which also opens comic books to the low/no-vision community;
  • Visiting the U.S. Congressional Autism Caucus by (Mike Doyle’s) invitation;
  • Continued issues of comics, including special guest artists and authors;
  • Advocating and teaching young people and adults about living with autism; and
  • Finishing my doctoral research as my health and time allows.
Copyright 2016 - Face Value Comics
Author: To date David Kot has published three comic books labeled Face Value Comics #1, #2, and #3. Face Value Comics #4 is in the production phase.

Ordering Information: You can order print copies of comics by Autism Face Value at their page on Indyplanet. Digital copies, including a pay-what-you-want price option on Issue #1, are available at Drive Thru Comics.

Education: David Kot has the following educational background.

David Kot
  • Since 2006 he has been studying at Capella University. He has earned a Master of Science in Human Services (Psychology) and did his graduate research in Self-funding community clinics to include self-injurious clients, in respect to billing, coding, and clinical interventions. 
  • David Kot is expected to earn his Doctor of Philosophy, Psychology in 2016 from Capella University. His PhD research focus has been Autism and multicultural, nonverbal communication strategies that promote compassion and empathy. 
Blogger: David Kot writes a blog as part of his advocacy on his website. The following two articles are representative of some of the content.
#WeAut2Vote Campaign: David Kot has been working hard to advocate for making voting accessible to people with autism in the Winter and Spring of 2016. He has solicited the support of ALL Pennsylvania senators and support is growing throughout the United States. His advocacy includes helping individuals with autism to:
  1. Register to Vote
  2. Identify their Local Polling Place
  3. Use Absentee Ballots When Their Disability Prevents Typical Voting Inclusion.
The York Dispatch wrote an article on David Kot's efforts to get out the autstic vote (Greg Gross, The York Dispatch, March 28, 2016).

Encouragement to those with Asperger's: David Kot offered these words of encouragement to others with Asperger's.
"In a world run by neurotypical people (i.e.: people without autism), some comforting words by George Bernard Shaw and the Kennedy family: 'You see things; and you say, ‘Why?’ But I dream things that never were; and I say, ‘Why not?’' By this, I encourage people living with autism to remember how we brought you a comic book hero with autism, not industry giants like DC or Marvel (Disney) Comics. I am just a guy living in a small town with a dream, limited resources, but with great supports who love and value me as much as any work I have done or may yet do (David Kot)."
David Kot provided this summary of his autism advocacy and his appreciation for people who assist him in shining his light for autism.
"In summary, I hope any other person – with or without autism – may look to what I have done and replicate something similar, for their own advocacy on any number of deeply-concerning social topics that get bypassed by mass media monopolies, and for the benefit of younger readers in the future. One may say that writing a comic book has launched autism advocacy through national news coverage, educational reform based on science with economical responsibility, address of congressional representatives, and review in a legitimate medical journal. Yes- a comic book paved the way. I think about our success as one average guy’s science-fiction story (equally heavy in both parts ‘science’ and ‘fiction’) that makes people believe in fantastic opportunities – in equality - like those events described. I could not have done any of these things without so many long evenings with my wife, Angela, and our artist, Sky Owens. He patiently taught me how to write for comic books, and his thirty years’ experience in the comic book industry shows on the static page. Angela listened to my writings, and offered many great changes from her views as a mother and wife living with autism. She also has a very active imagination! Overall, I am just a man. However, I also have great supports and people who love me. I never thought our comic book would be published in a medical journal before my own doctoral defense. We must never stop believing we deserve good things for ourselves or our children, who need our collective best (David Kot)."

Social Media: You can follow Face Value Comics at the following social media areas.
Media: You can read more about David Kot's autism advocacy in the following media features. 
Special thanks to David Kot for being an Autism Light through his amazing talent in comic book script. Face Value Comics is an independent company that can offer hope and encouragement to the autism community as well as educate others about this growing group of people in our society. We wish David continued success in his endeavors as a self-advocate and his role as an autism father.

Autism Light honors diverse heroes to the world of autism.




The photo of David Kot was used with permission of David Kot. Comic book images are copyright by Autism at Face Value (2016).

Monday, January 18, 2016

Michael Hannon

Autism Light #444 is Dr. Michael Hannon.



Photo of Martin Luther King

"Faith is taking the first step, even when you don't see the whole staircase." 





When autism parents commence on the journey of raising a child with an autism spectrum disorder, they are put in a position, like Dr. King says, of needing to work and love their child persistently without being able to see all the growth and success their child with autism will experience over time. I believe if Dr. King were living today he would have acknowledged the unique challenges autism families face, and would have been especially engaged with how autism impacts families in the African-American community. King would have been very supportive of research into finding out the influences of autism on diverse family systems and would have been publically grateful for the efforts of the following autism father and researcher who is being honored for Martin Luther King, Jr. Day in 2016.

Dr. Michael Hannon is a professor and autism father from Westampton, New Jersey. He and his wife LaChan Hannon have a 13 year-old daughter Nile and an 11 year-old son Avery. Avery has a form of autism. Dr. Michael Hannon is an Autism Light for his research into the potential rewards of fathering a child with autism within diverse communities.

Dr. Michael Hannon serves as the Assistant Professor of Counselor Education at Montclair State University, where his primary responsibility is teaching in the graduate level counseling program. He also serves as a mentor to doctoral students in their counseling doctorate program. Dr. Michael Hannon conducts research related to mental health and counseling and his research specialty is the influence of autism on broader family systems and fathers, with a particular emphasis on fathers and families of color. His website shows a summary of his previous work experience.

Legacy of Dr. Martin Luther King, Jr. (MLK): Dr. Michael Hannon told Autism Light that MLK influenced his work in this way.
Dr. Martin Luther King devoted his life, and particularly the latter part of his life, to an unapologetic fight for social justice. He was courageous to speak out and fight against racial discrimination, socioeconomic disparities, and war in revolutionary ways. His legacy influences my work in being able to share stories and experiences of an understudied and often misunderstood community: Black fathers of individuals with autism. There is important research about how autism affects family systems that includes highlighting disparities in diagnosis timing and access to care between racial/ethnic groups in the United States. While raising children with autism and other developmental differences can be challenging at times, the challenges might be exacerbated when we study the experiences of diverse parents. These exacerbated challenges may be based, in part, by negative interactions with service providers (e.g., teachers, therapists, etc.) that undermine trust between parents and service providers (Michael Hannon, January 13, 2016).

Education: Dr. Michael Hannon has completed the following educational degree programs.
Author: Dr. Michael Hannon has been the author or co-author of over 25 presentations, book chapters, and/or articles on the area of his expertise in counseling, mental health, and autism families.
Highlights of Research Findings: Some recurring messages that Dr. Michael Hannon has heard from fathers in his research include:
  • The most rewarding aspect of fathering individuals with autism is seeing their children successful.  
  • There is an orientation and adjustment process that fathers experience as they learn about their children’s autism diagnosis and possibly have to adjust their relationship expectations with their children with autism.  
  • Fathers seem to appreciate connecting with resembling fathers and families as they navigate fathering an individual with autism. 
  • Fathers are paying close attention to their different forms of capital (Dr. Michael Hannon, January 13, 2016)
Certifications: Dr. Michael Hannon is a National Certified Counselor (NCC) and a Licensed Associate Counselor (LAC) in New Jersey.

Awards: Dr. Michael Hannon received the Presidential Award by the Willingboro, New Jersey and Vicinity Branch of the NAACP in November 2015.
  
Conference Speaker: Dr. Michael Hannon provided the keynote at the 3rd Annual Conference for New Jersey Fathers of Children with Special Needs in October of 2015. Below is a brief excerpt of his presentation. More information on past conferences he presented at are listed on his blog.



Great Expectations Teaching & Advocacy Center for Childhood Disabilities, Inc. (GETAC): Michael and LaChan Hannnon founded GETAC on April 19, 2007 to offer advocacy, educational, and consultative services for parents raising children with developmental disabilities. Michael's wife, LaChan Hannon, serves as the Executive Director and the work of this non-profit is dear and near to them.

The following is a video of Google Hangout where Dr. Michael Hannon was on an online panel called Autism Brainstorm: Guy Talk that Dr. Robert Naseef did in March 2015 as part of a feature on an African-American perspective on raising children with autism. A second part of this series was taped in April 2015.


Advice to Autism Fathers: Dr. Michael Hannon shared this advice to autism fathers with Autism Light. 

"Fathers are important members of the family. When families have experiences that require something new or unexpected from them, it can be a source of both stress and enrichment. As they navigate this experience, I encourage fathers of children with autism to:
  • Learn (more) about themselves so they can engage with their families in healthy and honest ways. Discover (or rediscover) interests, hobbies, stress relief activities, and ways to support personal growth and development.
  • Learn about their children (with or without autism) so they can find connection points. Fathers may find they share interests, attitudes, dispositions with their children, which is awesome. They also may discover something their children enjoy that eventually becomes a mutual interest or something in which they entirely support their children.
  • Learn about autism by talking to trustworthy people who help build a sense of community. These can be other dads, romantic/marital partners, specialists and therapists, school personnel, and/or a faith community (if applicable). (Michael Hannon, January 13, 2016)."

"Life's most persistent and urgent question is, 'What are you doing for others?'".


Others Supporting Autism Families: Dr. Michael Hannon provided this insight to Autism Light on supporting fathers in diverse communities.
I appreciate the ongoing advocacy for individuals with autism by individuals with autism, their families, and concerned community members and groups. One way we can all continue to help families affected by autism is being courageous in helping eliminate the disparities in diagnosis, diagnosis timing, and access to care for families of different racial/ethnic groups. 
Another way to help is to continue balancing the autism narrative. All families experience stress, and raising an individual with autism can be stressful at times, and in different ways than raising an individual who does not have autism. However, the stress/coping narrative is not the only autism story. It’s great to be able to read, hear, and talk to those living with and/or affected by autism when they share their success and reward stories (Dr. Michael Hannon, January 13, 2016).
People-First Language: Dr. Hannon has a specific way in which he speaks about people with autism that affirms their dignity and that they are more than their autism diagnosis. He said this to Autism Light:
One last suggestion for all of us is to affirm the humanity of individuals with autism, by using people-first language. Unless I’m corrected, I try to address people with autism with that moniker: people WITH autism. I get concerned when we label a community by just one identifier, especially when that identifier has been constructed as something negative (e.g., autistic, diabetic, schizophrenic, etc.). Those identifiers can be sources of pride for the individuals living with such conditions and contribute to our diverse communities; however, I err on the side of caution and try to use people-first language in my interactions and recommend others do the same unless told otherwise (Dr. Michael Hannon, January 13, 2016).
Follow Michael Hannon on Social Media: 
Special thanks to Dr. Michael Hannon for being an Autism Light and fighting the good fight as an autism father, researcher, and counselor. His work is a benefit to the autism community and he is an appropriate representative of someone who has a passion to shape the world for the better like the great Dr. Martin Luther King, Jr.

This post is our 5th annual feature to honor someone who is an Autism Light in the spirit of Martin Luther King, Jr. Past honorees of Autism Light on Martin Luther King, Jr. day include:

2015

2014

2013

2012

Autism Light honors diverse heroes to the world of autism.

The photo of Martin Luther King, Jr. in this post is in the Creative Commons of 
Wikipedia and is from the National Archives and Records Administration. The photo of Michael Hannon is used with permission of Michael Hannon.

Friday, January 8, 2016

Jacob Allen

Autism Light #443 is Jacob Allen.

Jacob Allen is 4 years old and has autism. He lives in Arkansas Pass, Texas. On January 1, 2016, Jacob found his father Bryan Allen passed out from a diabetic attack and proceeded to get himself dressed and go to a neighbor for help, because his mother was at the store. Jacob Allen is an Autism Light for his mature thinking that helped save his father's life.

Doctors indicated that Bryan Allen could have went into a diabetic coma if he hadn't receive timely emergency medical attention. Below is a video of the news coverage on Jacob getting help for his father.

KRISTV.com | Continuous News Coverage | Corpus Christi

Jacob Allen's mother Michelle Allen said, "I have been ...told...not to expect very much of my son because he's autistic. Autistic kids...They're the same as everybody else. And they can be more miraculous than a regular person (KRISTV.com, Caroline Flores, January 1, 2016)."

Bryan Allen expressed his gratitude by saying of Jacob, "He's just the greatest...little kid there is. I wouldn't change him for nothin' (KRISTV.com, Caroline Flores, January 1, 2016)."

Special thanks to Jacob Allen for being an Autism Light. Jacob is one of many cases where individuals with autism made a difference for good in their families and communities. We wish Jacob all the best and hope he will continue to learn and grow in his life.

Autism Light honors diverse heroes to the world of autism.

Saturday, January 2, 2016

Brandon Williams

Autism Light #442 is Brandon Williams.

Brandon Williams is a 13 year old with autism who is in the 7th grade at Barnes Intermediate School in Staten Island, New York. On October 28, 2015, Brandon noticed a classmate, Jessica Pelligrino, choking. He successfully performed the Heimlich maneuver and saved Jessica. Brandon Williams is an Autism Light for his role in helping save a classmate when she was choking.

Brandon Williams was asked where he learned to perform the Heimlich maneuver and he shared that he learned it from watching the television show SpongeBob SquarePants. The following is a news story from the Staten Island Advance about Brandon Williams saving his classmate's life.'



Brandon's father, Anthony Williams, said, "He picks up on things that most of us would miss, and files it all away in his head, and he can recall it in an instant. That's how he knew instantly what to do. And we're glad he did. We're proud of him (The Mighty, Melissa McGlensy, 7th Grader with Autism now a Hero Thanks to SpongeBob SquarePants, November 6, 2015)." Anthony Williams was very encouraged by Brandon's heroic actions in this incident. He shared that this is what Brandon taught him about autism:
Raising special-needs kids, you feel like they're very limited in what they can do. This just proves don't ever hold your kid back for anything. There's no limits to what these kids can do. 
It's something positive in the autism-spectrum community, that there's hope. Don't ever think they can't do anything as they go on in life and as they get older (New York Daily News, Staten Island Teen with Autism Performs Heimlich Maneuver on Chocking Classmate after he 'learned it on SpongeBob', November 6, 2015). 
Special thanks to Brandon Williams for being an Autism Light. Brandon is representative of the many individuals with autism who are everyday heroes in their communities. We wish Brandon all the best and hope he will continue to learn and grow in his life.

Autism Light honors diverse heroes to the world of autism.